Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Worster-Drought Syndrome Support Group


Address

209-211 City Road
London, EC1V 1JN United Kingdom

Phone

2076088700

Description

The Worster-Drought Syndrome Support Group (WDSSG) offers support to families affected by Worster-Drought syndrome; raises awareness of this disease among health professionals and other interested individuals; and supports and promotes research. Worster-Drought syndrome is a form of cerebral palsy sometimes also known as congenital supra bulbar paresis. It is associated with a range of problems that include difficulties with chewing and swallowing, speech, and coordination. Because of the varying nature of symptoms, diagnosis is often made quite late. The syndrome is named for a physician who studied this disease in the early 1950s. Formed in 1994, the support group is based in the United Kingdom but sends information, including a newsletter, around the world.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.