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Xeroderma Pigmentosum Support Group


Address

Instron House
Coronation Road
Bucks, HP12 3SY United Kingdom

Phone

4401494456192

Description

The Xeroderma Pigmentosum Support Group (XPSG) provides support and encouragement to patients and families affected by xeroderma pigmentosum, a rare genetic disorder that causes extreme sensitivity to the sun's ultraviolet rays. Unless patients with XP are protected from sunlight, their skin and eyes may be severely damaged. This damage may lead to cancers of the skin and eye. The XP Support Group raises funds for XP research, gives grants for UV protective products, provides public education on the topic, and assists families to attend Camp Sundown, a camp in New York State and it has it's own annual night time camp in February called the Owl Patrol.

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