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XLH Network Inc.


Address

911 Central Ave., #161
Albany, NY 12206

Email Address

info@xlhnetwork.org

Description

The XLH Network is dedicated to providing support, networking, and educational services to XLH patients, friends, family members, clinical practitioners, and researchers. Established in 1996, the organization maintains a web site and an associated email group forum. Other services include online support, brochures and other information, and patient networking. There are approximately 500 subscribers to the mailing list. A general brochure is available in Portuguese and Spanish. X-linked hypophosphatemia or XLH (also known as X-linked hypophosphatemic rickets, familial hypophosphatemia, familial hypophosphatemic rickets and Vitamin D-resistant rickets) is an extremely rare genetic disorder in which a child's bones do not grow and develop normally, even if normal amounts of Vitamin D are present in the diet. The XLH Network, Inc. is an emerging non-profit organization, springing from an international voluntary organization whose members are affected by, or interested in, XLH and other associated diseases.

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