ZC4H2 Research Foundation

The ZC4H2 Research Foundation is a parent-led, non-profit organization comprised of dedicated volunteers.
The purpose of the ZC4H2 Research Foundation is to support the development of viable therapies and standards of clinical care for the treatment of ZC4H2 Associated Rare Disorders (ZARD), and to be an information and support network for the ZARD community.
Research · Advancing the development, execution, and application of scientific and clinical research on ZC4H2 and ZARD, with the aim of understanding and effectively treating this condition.
Awareness · Facilitating the dissemination of information and current best practices between the patients and the medical/scientific community, with the goal of developing standards of clinical care for the treatment and symptom management of ZARD patients.
Support · Supporting the ZARD community, by sharing relevant information to and from affected families and by creating lasting relationships to foster hope through science.