Acting FDA Commissioner Kyle Diamantas, NIH Director Jay Bhattacharya, and Director of National Health Communications for the Office of the Surgeon General Stephanie E. Haridopolos to Address 900+ Attendees at…
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The National Organization for Rare Disorders (NORD®) is honoring a distinguished group of biopharma industry leaders, medical scientists, and patient advocates for their contributions to improving the lives of the…
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Advocates Highlight Challenges Facing 1 in 4 Cancer Patients Diagnosed with a Rare Cancer WASHINGTON, D.C. and NORWELL, Mass., September 23, 2026 - Patients, caregivers, advocates, and clinicians joined the…
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Free, online learning series and career exploration toolkit introduce aspiring scientists to rare disease research through real-world case studies NORWELL, Mass., Sept. 15, 2026 — The National Organization for Rare…
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NORD Submits Formal Comments to CMS Urging Changes to Align the Final Rule with Congressional Intent and Protect Medically Frail People with Rare Diseases NORWELL, Mass., July 31, 2026 —…
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