Rare Disease News

Medicaid Work Requirements: NORD Resources, Statements & Implementation Tools

Published June 29, 2026 by NORD

The Centers for Medicare & Medicaid Services (CMS) has finalized new Medicaid community engagement (work) requirements that states must begin implementing by January 1, 2027. To help state policy leaders…

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National Organization for Rare Disorders Appoints Kathryn Lowell as Executive Vice President, Government Affairs

Published June 9, 2026 by NORD

Washington, D.C. — June 9, 2026 — The National Organization for Rare Disorders (NORD®), representing the 30 million Americans living with rare diseases, today announced the appointment of Kathryn Lowell…

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