Resource Library

Advocacy

Published October 15, 2022

Rare Neurological Disease Special Report

Advocacy, Legislative Advocacy

Published April 1, 2023

Rare Disease Patients and the Inflation Reduction Act

Published March 1, 2023

NORD Overview

Fundraising Tools, Rare Disease Day

Published February 16, 2023

How to Raise $500 in 10 Days

Fundraising Tools, Rare Disease Day

Published February 16, 2023

Email Template for Donation Ask

Fundraising Tools, Rare Disease Day

Published February 16, 2023

Guide to Fundraising for NORD

Rare Disease Advisory Councils (RDAC)

Published November 16, 2022

RDAC Stakeholders Meeting – 2022

RDCA-DAP

Published December 1, 2022

NORD Data Literacy

Rare Disease Advisory Councils (RDAC)

Published August 23, 2024

Rare Disease Advisory Council – One Pager

General Resources and Activities, Rare Disease Day

Rare Disease Day Trivia

Rare Disease Day

Governor’s Proclamation Toolkit

Rare Disease Day

Letter to the Editor – Sample

Rare Disease Day

Press Release Patient Story – Sample

Rare Disease Day

Proclamation Toolkit – All Municipalities

NORD Financials

Published November 4, 2022

2021 Form 990

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.ubermenu-item > .ubermenu-target,.ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{padding-left:calc(var(--ubermenu-accordion-indent) * 4);}.rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target,.rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{padding-left:0;padding-right:calc(var(--ubermenu-accordion-indent) * 2);}.rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target,.rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{padding-left:0;padding-right:calc(var(--ubermenu-accordion-indent) * 3);}.rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target,.rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{padding-left:0;padding-right:calc(var(--ubermenu-accordion-indent) * 4);}.ubermenu-responsive-toggle{display:block;}}@media screen and (max-width: 480px){.ubermenu.ubermenu-responsive .ubermenu-item-level-0{width:100%;}.ubermenu.ubermenu-responsive .ubermenu-column,.ubermenu.ubermenu-responsive .ubermenu-column-auto{min-width:100%;}.ubermenu .ubermenu-autocolumn:not(:first-child),.ubermenu .ubermenu-autocolumn:not(:first-child) .ubermenu-submenu-type-stack{padding-top:0;}.ubermenu .ubermenu-autocolumn:not(:last-child),.ubermenu .ubermenu-autocolumn:not(:last-child) .ubermenu-submenu-type-stack{padding-bottom:0;}.ubermenu .ubermenu-autocolumn > .ubermenu-submenu-type-stack > .ubermenu-item-normal:first-child{margin-top:0;}.ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-item > .ubermenu-submenu-drop,.ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-tab > .ubermenu-tab-content-panel{box-shadow:none;box-sizing:border-box;border-left:none;border-right:none;}.ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-item.ubermenu-active > .ubermenu-submenu-drop,.ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-tab.ubermenu-active > .ubermenu-tab-content-panel{position:static;}}.ubermenu-main .ubermenu-nav .ubermenu-item.ubermenu-item-level-0 > .ubermenu-target{font-weight:600;}.ubermenu-main .ubermenu-item-level-0 > .ubermenu-target{color:#0f131b;padding-left:12px;padding-right:12px;}.ubermenu-main .ubermenu-item-level-0.ubermenu-current-menu-item > .ubermenu-target,.ubermenu-main .ubermenu-item-level-0.ubermenu-current-menu-parent > .ubermenu-target,.ubermenu-main .ubermenu-item-level-0.ubermenu-current-menu-ancestor > .ubermenu-target{color:#fc4c02;}.ubermenu-main.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target:not(.ubermenu-noindicator){padding-right:27px;}.ubermenu-main.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target.ubermenu-noindicator{padding-right:12px;}.ubermenu-main .ubermenu-item-normal > .ubermenu-target,.ubermenu-main .ubermenu-submenu .ubermenu-target,.ubermenu-main .ubermenu-submenu .ubermenu-nonlink,.ubermenu-main .ubermenu-submenu .ubermenu-widget,.ubermenu-main .ubermenu-submenu .ubermenu-custom-content-padded,.ubermenu-main .ubermenu-submenu .ubermenu-retractor,.ubermenu-main .ubermenu-submenu .ubermenu-colgroup .ubermenu-column,.ubermenu-main .ubermenu-submenu.ubermenu-submenu-type-stack > .ubermenu-item-normal > .ubermenu-target,.ubermenu-main .ubermenu-submenu.ubermenu-submenu-padded{padding:5px;}.ubermenu-main .ubermenu-grid-row{padding-right:5px;}.ubermenu-main .ubermenu-grid-row .ubermenu-target{padding-right:0;}.ubermenu-main.ubermenu-sub-indicators .ubermenu-submenu :not(.ubermenu-tabs-layout-right) .ubermenu-has-submenu-drop > .ubermenu-target{padding-right:25px;}.ubermenu-main .ubermenu-submenu .ubermenu-item-header > .ubermenu-target,.ubermenu-main .ubermenu-tab > .ubermenu-target{font-size:16px;}.ubermenu-main .ubermenu-submenu .ubermenu-item-header > .ubermenu-target{color:#00558c;}.ubermenu-main .ubermenu-submenu .ubermenu-item-header > .ubermenu-target:hover{color:#00558c;}.ubermenu-main .ubermenu-nav .ubermenu-submenu .ubermenu-item-header > .ubermenu-target{font-weight:600;}.ubermenu-main .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-target{border:none;}.ubermenu-main .ubermenu-submenu-type-stack{padding-top:0;}.ubermenu-premasthead .ubermenu-nav .ubermenu-item.ubermenu-item-level-0 > .ubermenu-target{font-weight:500;}.ubermenu-premasthead .ubermenu-item-level-0 > .ubermenu-target{color:#0f131b;padding-left:8px;padding-right:8px;}.ubermenu-premasthead .ubermenu-item-level-0.ubermenu-current-menu-item > .ubermenu-target,.ubermenu-premasthead .ubermenu-item-level-0.ubermenu-current-menu-parent > .ubermenu-target,.ubermenu-premasthead .ubermenu-item-level-0.ubermenu-current-menu-ancestor > .ubermenu-target{color:#fc4c02;}.ubermenu-premasthead .ubermenu-item-level-0 > .ubermenu-target,.ubermenu-premasthead .ubermenu-item-level-0 > .ubermenu-custom-content.ubermenu-custom-content-padded{padding-top:6px;padding-bottom:6px;}.ubermenu-premasthead.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target:not(.ubermenu-noindicator){padding-right:23px;}.ubermenu-premasthead.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target.ubermenu-noindicator{padding-right:8px;}.ubermenu.ubermenu-premasthead .ubermenu-item-normal > .ubermenu-target:hover,.ubermenu.ubermenu-premasthead .ubermenu-item-normal.ubermenu-active > .ubermenu-target{color:#0099bc;}.ubermenu-premasthead,.ubermenu-premasthead .ubermenu-target,.ubermenu-premasthead .ubermenu-nav .ubermenu-item-level-0 .ubermenu-target{font:13px Lato,sans-serif;}.ubermenu-mobheadrmainmenu .ubermenu-item-level-0 > .ubermenu-target{font-size:20px;text-transform:capitalize;color:#0f131b;border-top:1px solid #979797;}.ubermenu-mobheadrmainmenu .ubermenu-nav .ubermenu-item.ubermenu-item-level-0 > .ubermenu-target{font-weight:400;}.ubermenu.ubermenu-mobheadrmainmenu .ubermenu-item-level-0:hover > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-active > .ubermenu-target{color:#0099bc;}.ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-current-menu-item > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-current-menu-parent > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-current-menu-ancestor > .ubermenu-target{color:#0099bc;background:#0099bc;}.ubermenu.ubermenu-mobheadrmainmenu .ubermenu-item-level-0 > .ubermenu-target{background:#fff;}.ubermenu-mobheadrmainmenu .ubermenu-item-normal > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-nonlink,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-widget,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-custom-content-padded,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-retractor,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-colgroup .ubermenu-column,.ubermenu-mobheadrmainmenu .ubermenu-submenu.ubermenu-submenu-type-stack > .ubermenu-item-normal > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-submenu.ubermenu-submenu-padded{padding:5px 5px;}.ubermenu-mobheadrmainmenu .ubermenu-grid-row{padding-right:5px 5px;}.ubermenu-mobheadrmainmenu .ubermenu-grid-row .ubermenu-target{padding-right:0;}.ubermenu-mobheadrmainmenu.ubermenu-sub-indicators .ubermenu-submenu :not(.ubermenu-tabs-layout-right) .ubermenu-has-submenu-drop > .ubermenu-target{padding-right:25px;}.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-item-header > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-tab > .ubermenu-target{font-size:18px;}.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-item-header > .ubermenu-target{color:#00558c;}.ubermenu-mobheadrmainmenu .ubermenu-nav .ubermenu-submenu .ubermenu-item-header > .ubermenu-target{font-weight:900;}.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-target{border:none;}.ubermenu-mobheadrmainmenu .ubermenu-submenu-type-stack{padding-top:0;}.ubermenu .ubermenu-item.ubermenu-item-13736 > .ubermenu-target,.ubermenu .ubermenu-item.ubermenu-item-13736 > .ubermenu-content-block,.ubermenu .ubermenu-item.ubermenu-item-13736.ubermenu-custom-content-padded{padding:12px 5px 37px 5px;}.ubermenu .ubermenu-item.ubermenu-item-13737 > .ubermenu-target,.ubermenu .ubermenu-item.ubermenu-item-13737 > .ubermenu-content-block,.ubermenu .ubermenu-item.ubermenu-item-13737.ubermenu-custom-content-padded{padding:12px 5px 52px 5px;}section.nord-layout img{max-width:100%;height:auto;}.page-id-101076 .su-spoiler-content{margin:0 !important;padding:0 !important;}.nord-rare-giving-list{display:flex;flex-wrap:wrap;}.membership-level-wrap{}.page-id-147 .fcl-3-columns-content .col-content-wrapper:nth-of-type(5){flex-basis:33.3%;}.logo-grid{display:flex;flex-wrap:wrap;}.nord-search-filter-wrap{background-color:#f1f1f1;border:1px solid #dedede;border-radius:4px;padding:15px;}.nord-search-filter-wrap.wide form .search-filter-field-group{justify-content:flex-start;}.nord-search-filter-wrap input[type="search"],.nord-search-filter-wrap select{height:38px;padding:2px 7px;width:100%;max-width:100%;border-radius:4px;}.nord-search-filter-wrap input[type="submit"]{display:flex;width:100%;height:38px;font-weight:600;align-items:center;justify-content:center;cursor:pointer;}.search-filter-field-group{margin-bottom:10px;}.nord-search-filter-wrap label{font-weight:600;}.nord-search-filter-wrap.wide{margin-top:2rem;margin-bottom:2rem;}.nord-search-filter-wrap.wide form{display:flex;flex-wrap:wrap;margin-left:-10px;margin-right:-10px;}.nord-search-filter-wrap.wide form .search-filter-field-group{display:flex;width:calc(100% / 3 - 20px);margin:10px;flex-direction:column;justify-content:space-between;}.nord-search-filter-wrap.wide input[type="submit"]{margin-top:10px;margin-right:10px;margin-left:10px;}.nord-ajax-results + .pagination-wrapper{margin-top:1rem;margin-bottom:4rem;}@media screen and (max-width:650px){.nord-search-filter-wrap.wide form .search-filter-field-group{width:100% !important;margin-left:0;margin-right:0;}}