Resource Library

Get Involved, Understanding Rare Disease

Finding & Connecting with Others in the Rare Community

Advocacy, Membership

Business Plan Template & Example (Print Ready)

Advocacy, Membership

Basics of Nonprofit Advocacy

Diversity, Equity & Inclusion

Published March 1, 2022

Kit de Herramientas de Diversidad, Equidad e Inclusion – Parte 3

Diversity, Equity & Inclusion

Published March 1, 2022

Diversity, Equity and Inclusion – Part 3 (Board Diversity – Growing Your Board of Directors to Reflect Your Diverse Community)

Diversity, Equity & Inclusion

Published March 1, 2022

Kit de Herramientas de Diversidad, Equidad e Inclusion – Parte 2

Gene Therapy

Gene Therapy Survey Highlights: Knowledge Gaps and Educational Opportunities. NORD/Frontline Medical Communications

Gene Therapy

Approved Cellular and Gene Therapy Products, FDA

Gene Therapy

Gene Therapy and Gene Editing Programs, NIH

Gene Therapy, Genetic Testing

Genetic Therapies, NIH

Gene Therapy

ASGCT Gene & Cell Therapy FAQs

Gene Therapy

ASGCT Gene & Cell Therapy Glossary

Gene Therapy

ASGCT Gene & Cell Therapy Education: Information for patients and the public about gene therapy, including a clinical trials finder database

Gene Therapy

Gene Therapy 101 Workshop (2022)

Gene Therapy

Gene Therapy Day 2, Session 2 HCP Session – NORD (National Organization for Rare Disorders) (rarediseases.org)