Resource Library

NORD Financials

Published January 1, 2020

2019 Annual Report

NORD Financials

Published January 1, 2021

2020 Form 990

NORD Financials

Published January 1, 2021

2020 Audited Financials

NORD Financials

Published January 1, 2021

2020 Annual Report

Advocacy, Rare Cancer

NORD RareInsights^® Rare Cancer Facts

Regulatory, Research & Drug Development

Published January 1, 2011

FDA’s Flexibility in Regulating Therapies

Advocacy, Legislative Advocacy, Research & Drug Development

Study on Orphan Drug Costs & Use

Advocacy, Research & Drug Development

Orphan Drug Costs & Expenditures

Advocacy, Research & Drug Development, Understanding Rare Disease

NORD RareInsights^® 5 Myths About the ODA

Advocacy, Regulatory, Research & Drug Development

Orphan Drug Trends in the United States 2018

Advocacy, Research & Drug Development

Published December 18, 2018

Orphan Drugs in the United States: Exclusivity, Pricing and Treated Populations

COVID-19

NORD RareInsights^® COVID-19 Community Survey Infographic

COVID-19

NORD RareInsights^® COVID-19 Community Survey Report

COVID-19

NORD RareInsights^® COVID-19 Community Survey Report #2

Advocacy, Regulatory, Telehealth, Understanding Rare Disease

NORD RareInsights^® Ensuring Access to Telehealth for Rare Diseases