Policy Statement NORD and coalition partners release press statement regarding the Missouri Senate Budget Committee’s failure to appropriate funding for Medicaid Expansion
Policy Statement NORD submits written testimony to the CO Senate Committee on Health & Human Services Committee in support of Senate Bill 186 to establish a Rare Disease Advisory Council
Policy Statement NORD testimony to the Tennessee Senate Health and Welfare committee in support of Senate Bill 2124, to create a rare disease advisory council
Policy Statement NORD testimony on Senate Bill 171 to the Rhode Island Senate Health and Human Services Committee
Policy Statement NORD letter of support to the NJ Senate Commerce Committee Chair in support of Senate Bill 3051-step therapy reform legislation
Policy Statement NORD letter of support to Alaska Senate Health and Social Services committee in support of Senate Bill 78 to increase telehealth access
Policy Statement NORD submits written testimony to Rhode Island’s Senate Health and Human Services Committee in support of Senate Bill 302, step therapy reform legislation
Policy Statement NORD and 21 other patient organizations submit a letter of support to the California Senate Appropriations Committee in support of Senate Bill 247 to establish an RDAC and Rare Disease Ombudsperson
Policy Statement NORD submits letter of support to the PA Senate Banking and Insurance Committee in support of Senate Bill 225, step therapy and prior authorization reform legislation
Policy Statement NORD submits written testimony to the Washington Senate Health and Long-Term Care Committee in support of Senate Bill 5886 to establish an RDAC
News NORD Issues Statement in Response to Senate Finance Committee’s Proposal to Weaken the Orphan Drug Tax Credit
Policy Statement NORD submits comments to the Florida Senate Health Policy Committee & House Healthcare Regulation Subcommittee in support of SB 1218/HB 805, biomarker legislation
News NORD Applauds House Energy and Commerce Committee Advancement of Bipartisan Legislation to Support Rare Disease Patient Access to Care and Treatment
Policy Statement NORD letter to the Senate Committee on Health, Education, Labor and Pensions (HELP) on the Lower Health Care Costs Act of 2019 (S. 1895)
Policy Statement NORD comments on the Senate Health, Education, Labor, and Pensions (HELP) Committee’s draft legislation, the Lower Health Care Costs Act of 2019
Policy Statement NORD Letter of Support to the Senate HELP Committee on the Nomination of Attorney General Xavier Becerra to be Secretary of HHS
Policy Statement NORD and 71 organizations urge Senate HELP committee to incorporate Title V in the House PDUFA bill
