News Statement by 36 Patient Organizations in Opposition to Senate’s Proposed Weakening of the Orphan Drug Tax Credit
News NORD Issues Statement Regarding the Release of Revised Draft of the Better Care Reconciliation Act
News Bennet, Burr, Warren, Hatch Introduce Bill to Help Patients by Facilitating Faster Development of Drugs for Rare Diseases
News US News & World Report Features NORD and Dr. Marshall Summar in “What To Do If Your Child Is Diagnosed with a Rare Disease”
Policy Statement NORD testimony to the Ohio Senate Health, Human Services, and Medicaid Committee in support of House Bill 412 to create a Rare Disease Advisory Council
Policy Statement NORD letter to the Louisiana Senate Insurance Committee in support of House Bill 263 to update the state’s step therapy law
Policy Statement MAPRx letter to the Senate Committee on Finance regarding its drug pricing legislative package
Policy Statement NORD letter to the Senate Committee on Finance regarding its drug pricing legislative package
Policy Statement NORD comments to the Massachusetts Senate Joint Committee on Financial Services regarding fail first legislation
Policy Statement Coalition letter urging the House to adopt the Senate Appropriations Committee’s funding levels for outreach and enrollment in marketplace coverage under the Affordable Care Act
Policy Statement Coalition statement regarding the Senate Finance Committee Hearing to Consider the Graham-Cassidy-Heller-Johnson Proposal
Policy Statement Coalition Letter to Senate Appropriations Committee on Support for Newborn Screening Program
Policy Statement NORD Letter to the Arkansas Senate Public Health, Welfare and Labor Committee Regarding Step Therapy Reform
Policy Statement Coalition letter to Chair of the Oregon Senate Committee on Health Care regarding copay assistance
Policy Statement NORD Letter of Support to the Senate Finance Committee on the Nomination of Attorney General Xavier Becerra to be Secretary of HHS
Policy Statement NORD Letter to the Arizona Senate Health and Human Serivces Committee regarding step therapy reform
Policy Statement NORD joins coalition testimony opposing Ohio Senate Bill 17 to the Government Oversight and Reform Committee
Policy Statement NORD Ambassador testimony opposing Ohio Senate Bill 17 to the Government Oversight and Reform Committee
Policy Statement NORD and several patient organizations submit letter of support to the California Senate Committee on Health for SB 247, a bill to establish a Rare Disease Advisory Council (RDAC) and ombudsperson
Policy Statement NORD and 21 Other Organizations Send Letter to Senate Labor, HHS Appropriations Subcommittee Regarding Increased Funding for Newborn Screening
Policy Statement NORD, American Heart Association, and 50 other Patient Organizations Sign on to Letter to Senate Labor, HHS Subcommittee on Appropriations Requesting Increased Funding for CDC’s National Center for Chronic Disease Prevention and Health Promotion
Policy Statement NORD letter to the Oregon Senate Committee on Health Care in support of HB2508, a bill to improve telehealth access
