Search Results for: orgs_by_letter.html

Policy Statement

NORD submits letter in support of CT S.B. No. 206, concerning the expansion of the Katie Beckett Waiver program

Policy Statement

NORD joins patient organizations in sending a letter to the House of Representatives regarding concerns about the detrimental impact of policies included in HR 2868, the Association Health Plans Act; HR 2813, the Self-Insurance Protection Act, and HR 3799, the CHOICE Arrangement Act

Policy Statement

NORD sends letter to CMS supporting Part D Out-of-Pocket Caps

Policy Statement

NORD and 78 patient organizations send letter to the HELP committee supporting the Retaining Access and Restoring Exclusivity (RARE) Act

Policy Statement

NORD and 11 other patient organizations submit a letter to the IN House Committee on Public Health urging them to support HB 1201, Rare Disease Advisory Council legislation

Policy Statement

NORD and 38 other patient organizations submit a letter to the TX Senate Health and Human Services Committee urging them to support SB 1408, Rare Disease Advisory Council legislation

Resource

Letterhead

Policy Statement

NORD and 15 organizations send letter to Senate Committee on Commerce and Labor urging the passage of SB 194

Policy Statement

NORD Sends a Letter of Support for Indiana Senate Bill 43 – Establishes a Rare Disease Advisory Council

Policy Statement

NORD and other patient advocacy groups sign letter showing their support of the Medicaid Program

Policy Statement

NORD and other patient advocacy groups send letter to Congress asking to oppose the REINS Act

Policy Statement

NORD and other stakeholders send letter to Minnesota lawmakers encouraging them to support the expansion of biomarker testing

Policy Statement

NORD signs on to letter sent to Ohio House Insurance Committee supporting biomarker legislation

Policy Statement

NORD and 42 other organizations submit a letter of support encouraging CT lawmakers to support biomarker legislation

Policy Statement

NORD letter of thanks to Rep. Rob Nosse, sponsor of Oregon House Bill 2047, a bill to create a Rare Disease Advisory Council

Policy Statement

NORD signs on to letter encouraging the expansion of New York’s 1332 Essential Plan

Policy Statement

NORD joins letter with 22 patient organizations asking Secretary Becerra to establish a National Directory of Healthcare Providers and Services

Policy Statement

NORD and the Medical Nutrition Equity Coalition sends letter to House leadership to include the MNEA in the end-of-year legislative package

Policy Statement

NORD Sends Letter of Support for HF 1501 to Fund Minnesota’s RDAC for FY2026 and FY2027

Policy Statement

NORD sends letter with 125 other patient organizations to ask Congressional leadership to reauthorize Title V programs and pass necessary reforms to benefit patients

Policy Statement

NORD joins leading patient organizations in letter to CMS urging the agency to protect patient access to Medicaid

Resource

Letter to the Editor – Sample

Policy Statement

NORD and seven patient organizations send letter to Maine Department of Environmental Protection urging an amendment to include medically necessary products in the “Stewardship Program for Packaging Law”

Webpage

Policy Statement

NORD and the All Copays Count Coalition sends a letter of support regarding the U.S. District Court Decision on 2021 Notice of Benefit and Payment Parameters Final Rule

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Search Results for: orgs_by_letter.html

NORD submits letter in support of CT S.B. No. 206, concerning the expansion of the Katie Beckett Waiver program

NORD joins patient organizations in sending a letter to the House of Representatives regarding concerns about the detrimental impact of policies included in HR 2868, the Association Health Plans Act; HR 2813, the Self-Insurance Protection Act, and HR 3799, the CHOICE Arrangement Act

NORD sends letter to CMS supporting Part D Out-of-Pocket Caps

NORD and 78 patient organizations send letter to the HELP committee supporting the Retaining Access and Restoring Exclusivity (RARE) Act

NORD and 11 other patient organizations submit a letter to the IN House Committee on Public Health urging them to support HB 1201, Rare Disease Advisory Council legislation

NORD and 38 other patient organizations submit a letter to the TX Senate Health and Human Services Committee urging them to support SB 1408, Rare Disease Advisory Council legislation

Letterhead

NORD and 15 organizations send letter to Senate Committee on Commerce and Labor urging the passage of SB 194

NORD Sends a Letter of Support for Indiana Senate Bill 43 – Establishes a Rare Disease Advisory Council

NORD and other patient advocacy groups sign letter showing their support of the Medicaid Program

NORD and other patient advocacy groups send letter to Congress asking to oppose the REINS Act

NORD and other stakeholders send letter to Minnesota lawmakers encouraging them to support the expansion of biomarker testing

NORD signs on to letter sent to Ohio House Insurance Committee supporting biomarker legislation

NORD and 42 other organizations submit a letter of support encouraging CT lawmakers to support biomarker legislation

NORD letter of thanks to Rep. Rob Nosse, sponsor of Oregon House Bill 2047, a bill to create a Rare Disease Advisory Council

NORD signs on to letter encouraging the expansion of New York’s 1332 Essential Plan

NORD joins letter with 22 patient organizations asking Secretary Becerra to establish a National Directory of Healthcare Providers and Services

NORD and the Medical Nutrition Equity Coalition sends letter to House leadership to include the MNEA in the end-of-year legislative package

NORD Sends Letter of Support for HF 1501 to Fund Minnesota’s RDAC for FY2026 and FY2027

NORD sends letter with 125 other patient organizations to ask Congressional leadership to reauthorize Title V programs and pass necessary reforms to benefit patients

NORD joins leading patient organizations in letter to CMS urging the agency to protect patient access to Medicaid

Letter to the Editor – Sample

NORD and seven patient organizations send letter to Maine Department of Environmental Protection urging an amendment to include medically necessary products in the “Stewardship Program for Packaging Law”

Newsletter

NORD and the All Copays Count Coalition sends a letter of support regarding the U.S. District Court Decision on 2021 Notice of Benefit and Payment Parameters Final Rule

Make 2026 Count: Gift research, care, and advocacy for families everywhere

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