News NORD Publishes New Rare Disease Report on Retinal Vasculopathy with Cerebral Leukodystrophy (RVCL)
Policy Statement NORD and other patient advocacy groups send letter to CMS on Georgia SBE Blueprint Letter
Policy Statement Coalition letter from over 200 patient organizations imploring Congress to maintain the Orphan Drug Tax Credit **Updated letter as of November 10**
News Skin Cancer Risk in Congenital Ichthyoses: How All of Us Data Supports Real-World Rare Disease Research
