Search Results for: reports_by_letter.html

Policy Statement

Coalition letter to the Senate regarding its recent bill on pre-existing conditions protections

Policy Statement

Coalition letter asking Congress to continue supporting the medical expense deduction

Policy Statement

Coalition letter asking Congress to refrain from funding agriculture association health plans (AHPs)

Policy Statement

Coalition letter to CMS regarding the recent court ruling on Kentucky’s work requirement in Medicaid

Policy Statement

Coalition letter to insurance commissioners across the nation expressing concerns with copay accumulators

Policy Statement

Coalition letter requesting Michigan to release additional data regarding its recently updated Section 1115 waiver

Policy Statement

Alliance for a Stronger FDA letter to Congress regarding FDA appropriations

Policy Statement

Coalition letter in support of copay assistance in Massachusetts

Policy Statement

Coalition letter in opposition to legislation in Pennsylvania that would seek to implement work requirements in Medicaid

Policy Statement

Sign-on letter from patient organizations in support of Michigan House Bill 5983, an act to establish a Rare Disease Advisory Council.

Policy Statement

NORD letter of support for New Jersey Assembly Bill 2431, bipartisan legislation to limit out-of-pocket prescription costs

Policy Statement

NORD letter in support of Ohio Senate Bill 56, an act pertaining to step therapy protections

Policy Statement

NORD letter in support of New Hampshire House Bill 1791, an act calling for prescriber communication with regard to biosimilars

Policy Statement

Coalition letter urging CMS to rescind invitation to states to include work requirement policies in their 1115 demonstration waiver applications

Policy Statement

Coalition letter to Congress requesting continued support for the defense health research programs funded through the Congressionally Directed Medical Research Programs (CDMRP) at the Department of Defense (DOD)

Policy Statement

Coalition letter to the Administration in opposition to its proposed rule regarding short-term, limited-duration plans (STLDs)

Policy Statement

Coalition letter in opposition to the Right to Try Act (S.204)

Policy Statement

Sign-on letter from over 100 rare disease patient organizations in support of the RARE Act of 2018

Policy Statement

NORD letter in support of Connecticut House Bill 5297, an act requiring continuing medical education in screening for rare gastrointestinal cancers

Policy Statement

Coalition letter asking Congress to voice opposition to the proposed rule regarding short-term, limited-duration plans (STLDs)

Policy Statement

Coalition letter in opposition to Michigan Senate Bill 897, a bill requiring the state to implement a work requirement in its Medicaid program

Policy Statement

Coalition letter to Secretary Azar regarding Medicare Part D’s protected classes policy

Policy Statement

Coalition letter asking Governors to voice opposition to the proposed rule regarding short-term, limited-duration plans (STLDs)

Policy Statement

Coalition letter asking Congress to appropriate funds for the Pediatric Device Consortia (PDC) Grant Program

Policy Statement

NORD letter in support of West Virginia House Bill 4524, an act calling for prescriber communication with regard to biosimilars

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Search Results for: reports_by_letter.html

Coalition letter to the Senate regarding its recent bill on pre-existing conditions protections

Coalition letter asking Congress to continue supporting the medical expense deduction

Coalition letter asking Congress to refrain from funding agriculture association health plans (AHPs)

Coalition letter to CMS regarding the recent court ruling on Kentucky’s work requirement in Medicaid

Coalition letter to insurance commissioners across the nation expressing concerns with copay accumulators

Coalition letter requesting Michigan to release additional data regarding its recently updated Section 1115 waiver

Alliance for a Stronger FDA letter to Congress regarding FDA appropriations

Coalition letter in support of copay assistance in Massachusetts

Coalition letter in opposition to legislation in Pennsylvania that would seek to implement work requirements in Medicaid

Sign-on letter from patient organizations in support of Michigan House Bill 5983, an act to establish a Rare Disease Advisory Council.

NORD letter of support for New Jersey Assembly Bill 2431, bipartisan legislation to limit out-of-pocket prescription costs

NORD letter in support of Ohio Senate Bill 56, an act pertaining to step therapy protections

NORD letter in support of New Hampshire House Bill 1791, an act calling for prescriber communication with regard to biosimilars

Coalition letter urging CMS to rescind invitation to states to include work requirement policies in their 1115 demonstration waiver applications

Coalition letter to Congress requesting continued support for the defense health research programs funded through the Congressionally Directed Medical Research Programs (CDMRP) at the Department of Defense (DOD)

Coalition letter to the Administration in opposition to its proposed rule regarding short-term, limited-duration plans (STLDs)

Coalition letter in opposition to the Right to Try Act (S.204)

Sign-on letter from over 100 rare disease patient organizations in support of the RARE Act of 2018

NORD letter in support of Connecticut House Bill 5297, an act requiring continuing medical education in screening for rare gastrointestinal cancers

Coalition letter asking Congress to voice opposition to the proposed rule regarding short-term, limited-duration plans (STLDs)

Coalition letter in opposition to Michigan Senate Bill 897, a bill requiring the state to implement a work requirement in its Medicaid program

Coalition letter to Secretary Azar regarding Medicare Part D’s protected classes policy

Coalition letter asking Governors to voice opposition to the proposed rule regarding short-term, limited-duration plans (STLDs)

Coalition letter asking Congress to appropriate funds for the Pediatric Device Consortia (PDC) Grant Program

NORD letter in support of West Virginia House Bill 4524, an act calling for prescriber communication with regard to biosimilars

Make 2026 Count: Gift research, care, and advocacy for families everywhere

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