Search Results for: reports_by_letter.html

Policy Statement

Coalition letter in opposition of Rhode Island Senate Bill 2532, an act that would prevent copay assistance from being applied to out-of-pocket expenses

Policy Statement

Sign-on letter to the Senate from 106 patient and provider organizations in opposition to the Right to Try Act

Policy Statement

Coalition letter regarding recent policy changes proposed by the administration

Policy Statement

Updated sign-on letter from over 100 patient and provider organizations in opposition to the Right to Try Act

Policy Statement

Sign-on letter from 82 patient organizations in opposition to the newest version of the Right to Try Act

Policy Statement

NORD letter in support of Connecticut Senate Bill 398, an act relating to the enforcement of Connecticut’s step therapy law

Policy Statement

Coalition letter to Congress regarding medical research within the fiscal year 2019 National Defense Authorization Act

Policy Statement

Coalition letter to Congress in support of the Medical Nutrition Equity Act (S.1194/H.R.2587)

Policy Statement

Coalition sign-on letter to Medicaid Directors on the importance of Medicaid formulary access for rare disease patients

Policy Statement

Coalition letter to Secretary Azar regarding Idaho’s recent insurance bulletin

Policy Statement

NORD letter in support of Ohio Senate Bill 56, an act relating to step-therapy

Policy Statement

NORD letter in support of Oregon House Bill 4156, an act relating to out-of-pocket costs

Policy Statement

Coalition letter to Congress in opposition to the Right to Try Act

Policy Statement

American Plasma Users (APLUS) coalition letter regarding the Patient Notification System (PNS)

Policy Statement

Coalition letter to Congress regarding a desire for a hearing on ensuring patient safety and access in the midst of the Biologics Price Competition and Innovation Act (BPCIA)

Policy Statement

NORD letter in support of South Dakota Senate Bill 75, an act calling for prescriber communication with regard to biosimilars

Policy Statement

NORD letter in support of adding SMA to Georgia’s newborn screening panel

Policy Statement

NORD letter to Pennsylvania’s Rare Disease Council regarding the state’s newborn screening panel

Policy Statement

Coalition letter to the Centers for Medicare and Medicaid Services (CMS) regarding direct and indirect remuneration (DIR)

Policy Statement

Coalition letter to tax reform conferees regarding the ACA’s individual mandate

Policy Statement

Coalition letter to the conference committee in strong support of the medical expense deduction

Policy Statement

Coalition letter urging Congress to protect funding for the Medicare State Health Insurance Assistance Program (SHIP) for FY18

Policy Statement

Coalition letter from over 160 patient organizations to the tax reform conference committee in strong support of the Orphan Drug Tax Credit

Policy Statement

NORD letter of opposition regarding Arkansas Board of Pharmacy’s proposed rule

Policy Statement

Coalition letter to the Senate in support of the Collins Amendment

< Prev
1
…
10
11
12
…
22
Next >

Update Search

Filter Results

Update Search

Filter Results

Search Results for: reports_by_letter.html

Coalition letter in opposition of Rhode Island Senate Bill 2532, an act that would prevent copay assistance from being applied to out-of-pocket expenses

Sign-on letter to the Senate from 106 patient and provider organizations in opposition to the Right to Try Act

Coalition letter regarding recent policy changes proposed by the administration

Updated sign-on letter from over 100 patient and provider organizations in opposition to the Right to Try Act

Sign-on letter from 82 patient organizations in opposition to the newest version of the Right to Try Act

NORD letter in support of Connecticut Senate Bill 398, an act relating to the enforcement of Connecticut’s step therapy law

Coalition letter to Congress regarding medical research within the fiscal year 2019 National Defense Authorization Act

Coalition letter to Congress in support of the Medical Nutrition Equity Act (S.1194/H.R.2587)

Coalition sign-on letter to Medicaid Directors on the importance of Medicaid formulary access for rare disease patients

Coalition letter to Secretary Azar regarding Idaho’s recent insurance bulletin

NORD letter in support of Ohio Senate Bill 56, an act relating to step-therapy

NORD letter in support of Oregon House Bill 4156, an act relating to out-of-pocket costs

Coalition letter to Congress in opposition to the Right to Try Act

American Plasma Users (APLUS) coalition letter regarding the Patient Notification System (PNS)

Coalition letter to Congress regarding a desire for a hearing on ensuring patient safety and access in the midst of the Biologics Price Competition and Innovation Act (BPCIA)

NORD letter in support of South Dakota Senate Bill 75, an act calling for prescriber communication with regard to biosimilars

NORD letter in support of adding SMA to Georgia’s newborn screening panel

NORD letter to Pennsylvania’s Rare Disease Council regarding the state’s newborn screening panel

Coalition letter to the Centers for Medicare and Medicaid Services (CMS) regarding direct and indirect remuneration (DIR)

Coalition letter to tax reform conferees regarding the ACA’s individual mandate

Coalition letter to the conference committee in strong support of the medical expense deduction

Coalition letter urging Congress to protect funding for the Medicare State Health Insurance Assistance Program (SHIP) for FY18

Coalition letter from over 160 patient organizations to the tax reform conference committee in strong support of the Orphan Drug Tax Credit

NORD letter of opposition regarding Arkansas Board of Pharmacy’s proposed rule

Coalition letter to the Senate in support of the Collins Amendment

Make 2026 Count: Gift research, care, and advocacy for families everywhere

Update Search

Filter Results

Update Search

Filter Results

Search Results for: reports_by_letter.html

Access State Report Card Data