Policy Statement Coalition letter urging Congressional leadership to strengthen the Medicaid program in future legislation to address the COVID-19 pandemic
Policy Statement NORD letter to the Louisiana Senate Insurance Committee in support of House Bill 263 to update the state’s step therapy law
Policy Statement Coalition letter to the Centers for Medicare and Medicaid Services supporting the inclusion of a mechanism to spread out Medicare Part D out-of-pocket costs over the course of a year in the Part D Modernization Model
Policy Statement Coalition letter to Congressional leadership urging an end to all surprise medical billing
Policy Statement Coalition letter urging the Department of Health and Human Services to issue additional guidance to prevent discrimination for triaging and health care during the COVID-19 pandemic
Policy Statement Coalition letter to Louisiana Insurance Commissioner in support of resuming LDI Rule 40 to protect against the loss of health coverage due to inability to pay premiums for 90 days after the end of Louisiana’s COVID-19 emergency declaration
Policy Statement Coalition letter to Virginia Governor Northam urging him to veto Senate Bill 861 and Senate Bill 235/House Bill 795
Policy Statement Coalition letter to Louisiana Governor Edwards requesting the state adopt a policy that refrains from discriminating against people with disabilities and chronic conditions during the COVID-19 emergency
Policy Statement Coalition letter to Connecticut Governor Lamont on the state’s document titled “Standards of Care: Providing Health Care During A Prolonged Public Health Emergency” and requesting that he continue to work with the disability and chronic care community as the state develops additional guidance during COVID-19
Policy Statement Coalition letter to New Hampshire Governor Sununu requesting the state adopt a policy that refrains from discriminating against people with disabilities and chronic conditions during the COVID-19 emergency
Policy Statement Coalition letter to Senate leadership urging the inclusion of bridge funding for stalled research in the next COVID-19 relief package
Policy Statement Coalition letter to HHS urging allowance of copay assistance to count toward annual cost sharing in 2021 Notice of Benefit & Payment Parameters
Policy Statement Coalition letter to New Jersey Governor Murphy highlighting concerns in recent guidance and requesting that he continue to work with the disability and chronic care community as the state develops additional guidance during COVID-19
Policy Statement Coalition letter to New York Governor Cuomo to express concerns over the state’s ventilator allocation guidelines during COVID-19
Policy Statement NORD letter to the Massachusetts Joint Health Care Financing Committee in support of H.4268, to create a Rare Disease Advisory Council
Policy Statement Coalition letter to Texas Governor Abbott requesting the state adopt a policy that refrains from discriminating against people with disabilities and chronic conditions during the COVID-19 emergency
Policy Statement Coalition letter to Florida Governor Desantis requesting the state adopt a policy that refrains from discriminating against people with disabilities and chronic conditions during the COVID-19 emergency
Policy Statement Coalition letter to Virginia Governor Northam requesting the state adopt a policy that refrains from discriminating against people with disabilities and chronic conditions during the COVID-19 emergency
Policy Statement NORD letter of support for AB 2283 to create California’s Rare Disease Ombudsperson and Rare Disease Advisory Council
Policy Statement NORD letter to the Chair of the California Assembly Health Committee in support of AB 2124, to create to create common-sense utilization management protections for patients
Policy Statement Coalition letter to Congressional leadership urging guardrails on the use of step therapy protocols in Medicare and Medicaid during COVID-19
Policy Statement Coalition letter to the Virginia General Assembly urging them to support Governor Northam’s recommendation for three bills: SB 861, SB 235 and HB 795
Policy Statement Coalition letter to the Governor of Kansas expressing concerns over a “Toolkit for COVID-19” issued by the Department of Health that could discriminate against older Americans and those the pre-existing conditions
Policy Statement Coalition letter Urging HHS to Prevent Discrimination For Triaging and Health Care During COVID-19