Search Results for: reports_by_letter.html

Policy Statement

NORD and other stakeholders submit letter to Congress urging passage of the PASTEUR Act

Policy Statement

NORD Signs On to A Letter to The Committee on Education and the Workforce Request for Information on Employer-Sponsored Insurance and Employee Retirement Income Security Act (ERISA)

Policy Statement

NORD Sends a Letter of Support to Members the House Energy and Commerce Committee to Vote Yes to Advance Amendment in the Nature of a Substitute to H.R. 3433, Give Kids a Chance Act, which includes key provisions of H.R.7384, Creating Hope Reauthorization Act, H.R. 7383, Retaining Access and Restoring Exclusivity (RARE) Act, and H.R. 6664, Innovation for Pediatric Drugs Act

Policy Statement

NORD and 100 rare disease patient organizations send letter to CMS regarding Medicare Drug Price Negotiation Program Guidance

Policy Statement

NORD and other patient advocacy groups send letter to Congressional Leadership urging them to protect Medicare, Medicaid, and Social Security Programs

Policy Statement

NORD and other patient advocacy groups send letter to President Biden and Vice President Harris urging them tp protect Medicare, Medicaid, and Social Security Programs

Policy Statement

NORD Sends a Letter of Support for Vermont House Bill 573 – Establishes a Rare Disease Advisory Council

Policy Statement

NORD submits letter to CMS outlining improvements needed for the Medicare Part D Low Income Subsidy program

Policy Statement

NORD letter to CA Governor Newsom in support of California AB 1880, utilization management reform legislation

Policy Statement

NORD Signs On To Letter Urging Congress to Swiftly Pass Pharmacy Benefit Manager (PBM) Reforms That Ensure Patient Access to More Affordable Healthcare

Policy Statement

NORD Joins Leading Patient Organizations in Letter to HHS on 2026 NBPP

Policy Statement

NORD Submits Letter of Support on A1825 (Conaway) An Act Establishing Certain Guidelines Concerning Step Therapy Protocols

Policy Statement

NORD and other stakeholders send letter to North Carolina applauding Medicaid expansion

Policy Statement

NORD joins 20 organizations to send letter of support on patient protections and consumer-focused policies to Secretary Becerra

Policy Statement

NORD submits comment letter on Rhode Island’s 1115 Demonstration Extension

Policy Statement

NORD and 26 organizations send letter to Congressional leadership to applaud expansion of APTC within the Inflation Reduction Act

Policy Statement

NORD Sends Letter of Support On Tennessee HB1973 – An Act Relative to Newborn Screening

Policy Statement

NORD Sends Letter of Support to the Vermont House for Provisions of Vermont H.766 Relating to Step Therapy Requirements

Policy Statement

NORD Sends Letter of Support to Vermont Senate Health for H.766 Relating to Step Therapy Reforms

Policy Statement

NORD joins 22 other organizations in sending a letter to the House Energy & Commerce Committee conveying patient community concerns about the detrimental impact of HR 824, the Telehealth Benefit Expansion for Workers Act

Policy Statement

NORD and many patient organizations send a letter to the House of Representatives encouraging continued support and funding for the Congressionally Directed Medical Research Programs (CDMRP) at the DoD

Policy Statement

Coalition letter to the Louisiana House Committee on Insurance in support of House Bill 263, to reform step therapy protections for patients

Policy Statement

Coalition letter to the South Dakota Federal Congressional Delegation to express support for federal step therapy reform legislation

Policy Statement

Coalition letter urging Secretary Azar to ensure that the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) can continue its work

Policy Statement

Coalition letter asking the Centers for Medicare and Medicaid Services to provide flexibility to Medicare Advantage and Prescription Drug Plan sponsors to waive the use of step therapy requirements during the COVID-19 pandemic

< Prev
1
…
3
4
5
…
22
Next >

Update Search

Filter Results

Update Search

Filter Results

Search Results for: reports_by_letter.html

NORD and other stakeholders submit letter to Congress urging passage of the PASTEUR Act

NORD Signs On to A Letter to The Committee on Education and the Workforce Request for Information on Employer-Sponsored Insurance and Employee Retirement Income Security Act (ERISA)

NORD and 100 rare disease patient organizations send letter to CMS regarding Medicare Drug Price Negotiation Program Guidance

NORD and other patient advocacy groups send letter to Congressional Leadership urging them to protect Medicare, Medicaid, and Social Security Programs

NORD and other patient advocacy groups send letter to President Biden and Vice President Harris urging them tp protect Medicare, Medicaid, and Social Security Programs

NORD Sends a Letter of Support for Vermont House Bill 573 – Establishes a Rare Disease Advisory Council

NORD submits letter to CMS outlining improvements needed for the Medicare Part D Low Income Subsidy program

NORD letter to CA Governor Newsom in support of California AB 1880, utilization management reform legislation

NORD Signs On To Letter Urging Congress to Swiftly Pass Pharmacy Benefit Manager (PBM) Reforms That Ensure Patient Access to More Affordable Healthcare

NORD Joins Leading Patient Organizations in Letter to HHS on 2026 NBPP

NORD Submits Letter of Support on A1825 (Conaway) An Act Establishing Certain Guidelines Concerning Step Therapy Protocols

NORD and other stakeholders send letter to North Carolina applauding Medicaid expansion

NORD joins 20 organizations to send letter of support on patient protections and consumer-focused policies to Secretary Becerra

NORD submits comment letter on Rhode Island’s 1115 Demonstration Extension

NORD and 26 organizations send letter to Congressional leadership to applaud expansion of APTC within the Inflation Reduction Act

NORD Sends Letter of Support On Tennessee HB1973 – An Act Relative to Newborn Screening

NORD Sends Letter of Support to the Vermont House for Provisions of Vermont H.766 Relating to Step Therapy Requirements

NORD Sends Letter of Support to Vermont Senate Health for H.766 Relating to Step Therapy Reforms

NORD joins 22 other organizations in sending a letter to the House Energy & Commerce Committee conveying patient community concerns about the detrimental impact of HR 824, the Telehealth Benefit Expansion for Workers Act

NORD and many patient organizations send a letter to the House of Representatives encouraging continued support and funding for the Congressionally Directed Medical Research Programs (CDMRP) at the DoD

Coalition letter to the Louisiana House Committee on Insurance in support of House Bill 263, to reform step therapy protections for patients

Coalition letter to the South Dakota Federal Congressional Delegation to express support for federal step therapy reform legislation

Coalition letter urging Secretary Azar to ensure that the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) can continue its work

Coalition letter asking the Centers for Medicare and Medicaid Services to provide flexibility to Medicare Advantage and Prescription Drug Plan sponsors to waive the use of step therapy requirements during the COVID-19 pandemic

Make 2026 Count: Gift research, care, and advocacy for families everywhere

Update Search

Filter Results

Update Search

Filter Results

Search Results for: reports_by_letter.html

Access State Report Card Data