News Head of the Herd: Katie Wright, Director, The VEDS Movement (a division of The Marfan Foundation)
Patient Assistance Program Tuberous Sclerosis Complex (TSC) Bcureful Research Study Participation Travel & Lodging Assistance
News NORD Outlines Steps to Promote Innovative Drug Discovery, Development and Delivery for Americans with Rare Diseases
News National Organization for Rare Disorders (NORD) Launches the Living Rare Study – First to Measure Full Scope of Rare Disease Challenges
News Guest Blog: How Collaboration Drives Early Diagnosis and Better Outcomes During Infantile Spasms Awareness Week
News NORD Breakthrough Summit 2022: Highly Anticipated Rare Disease Conference Announces Keynote Speakers, Session Topics
News NIH, FDA and 15 private organizations join forces to increase effective gene therapies for rare diseases
