Policy Statement NORD joins numerous organizations in requesting the Senate to continue supporting and funding the Congressionally Directed Medical Research Programs (CDMRP) at the DoD
Policy Statement NORD submits comments on “Pediatric Drug Development: Regulatory Considerations — Complying With the Pediatric Research Equity Act and Qualifying for Pediatric Exclusivity Under the Best Pharmaceuticals for Children Act”
News Head of the Herd: Katie Wright, Director, The VEDS Movement (a division of The Marfan Foundation)
Patient Assistance Program Tuberous Sclerosis Complex (TSC) Bcureful Research Study Participation Travel & Lodging Assistance
News NORD Outlines Steps to Promote Innovative Drug Discovery, Development and Delivery for Americans with Rare Diseases
