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National Organization for Rare Disorders (NORD) Announces 2025 Industry Innovation and Rare Impact Award Honorees

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Guest Blog: One Mother’s Mission Turns Into a Global Movement for a Cure for MSD

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NORD Highlights New Era of Innovation and Public Health Awareness in Virtual 2020 Rare Diseases and Orphan Products Breakthrough Summit

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Creative Collaborations May Be Key to Reducing Chemotherapy Risks

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The Story Behind the Rare Disease Day School Curriculum

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Genzyme and NORD Establish Program to Help Undiagnosed Patients with Rare Diseases

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Multiple Endocrine Neoplasia Type 1: One Family’s Fight

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Multiple Endocrine Neoplasia Type 1: One Family’s Fight

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2015 Portraits of Courage Honoree, Tony Ferrandino

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2015 Portraits of Courage Honoree, Lori Sames

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Member Spotlight: AMEN Support

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Life with CGD

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Guest Blog: A Parent Advocate & Author Discusses Courage

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Noah Victoria: 2016 Rare Impact Award Honoree

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Debra Miller: 2016 Rare Impact Awards Honoree

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Becoming a Marathon Runner

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Eleven Major Patient Groups Outline Joint Position on Health Care Reform

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NORD Issues Statement Opposing the Preserving Employee Wellness Programs Act (H.R.1313)

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NORD and Neurology Reviews Publish Special Report

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Maria Kefalas, Ph.D.: 2018 Rare Impact Award Honoree

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Upcoming Externally-Led Patient Focused Drug Development Meeting for PKD Community

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Voices of Rare Cancer: Paul’s Story

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Voices of Rare Cancer: Graeleigh’s Story

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Amish Community Testimony

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Head of the Herd: Michele Sloan, Foundation to Fight H-abc

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