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Rare Disease Day: Finn’s Story

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Patient Advocacy Organizations Outline Joint Position on Expanded Access to Experimental Drugs for Seriously Ill Patients

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NORD Publishes New Rare Disease Report on CARD9 Deficiency

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Fighting Isolation When You Are One in a Million: Gabby’s Story in Honor of Rare Disease Day

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NORD Announces Keynote Speakers for 2017 Rare Diseases and Orphan Products Breakthrough Summit

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NORD Partners with Frontline Medical Communications on Publications for Medical Professionals in Oncology and Rheumatology

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Jan’s Story of Hope

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Ellen V. Sigal, Ph.D.: 2018 Rare Impact Award Honoree

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Robert Campbell, Jr., M.D.: 2018 Lifetime Achievement Award Honoree

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Guest Blog: Uniting for Behçet’s Disease Awareness on May 20

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Finding Purpose in Advocacy: Jenny’s Story in Honor of Rare Cancer Day

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National Organization for Rare Disorders and OpenEvidence Partner to Bring AI-Powered Rare Disease Resources to Clinicians and Patients Worldwide

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NORD IAMRARE APS Type 1 Patient Registry Launched

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Dr. Debra Regier: 2019 Rare Impact Award Honoree

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From Voices to Breakthroughs: Celebrating the 2025 NORD Breakthrough Summit

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Arthur’s CIDP Story

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Mark Your Calendars – October 1 is Rare Cancer Day!

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Voices of Rare Cancer: Kristin’s Story

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What Rare Disease Patient Advocacy Groups Are Doing to Mitigate the Effects of Disparities

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Voices of Rare Cancer: Susan’s Story

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2019 NORD Summit Breaks Records with Largest Attendance Ever!

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The Importance of Patient Voices and Data Analytics

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National Organization for Rare Disorders (NORD) Names Pamela K. Gavin as CEO; Peter L. Saltonstall Retires and Will Serve in Consultative Role

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Head of the Herd: Leah Schust Myers, FamilieSCN2A Foundation

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NORD Applauds Congressional Efforts to Restore Intent of the Orphan Drug Act

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