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National Organization for Rare Disorders (NORD) Names Pamela K. Gavin as CEO; Peter L. Saltonstall Retires and Will Serve in Consultative Role

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Head of the Herd: Leah Schust Myers, FamilieSCN2A Foundation

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NORD Applauds Congressional Efforts to Restore Intent of the Orphan Drug Act

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NORD’s 2025 Rare Diseases & Orphan Products Breakthrough Summit to Spotlight CEOs, Investors, and Regulatory Leaders Driving Innovation

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NORD Launches Natural History Study for Undiagnosed Rare Diseases

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Neurology Reviews and NORD Publish Annual Rare Neurological Disease Special Report

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NORD Awards COVID-19 Rapid Response Seed Grants to Rare Disease Patient Organizations Impacted by the Pandemic

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RDCA-DAP First Year Milestones Highlighted at Virtual Workshop

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Creative Collaborations May Be Key to Reducing Chemotherapy Risks

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The Story Behind the Rare Disease Day School Curriculum

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Genzyme and NORD Establish Program to Help Undiagnosed Patients with Rare Diseases

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Multiple Endocrine Neoplasia Type 1: One Family’s Fight

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Multiple Endocrine Neoplasia Type 1: One Family’s Fight

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2015 Portraits of Courage Honoree, Tony Ferrandino

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2015 Portraits of Courage Honoree, Lori Sames

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Member Spotlight: AMEN Support

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Life with CGD

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Guest Blog: A Parent Advocate & Author Discusses Courage

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Noah Victoria: 2016 Rare Impact Award Honoree

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Debra Miller: 2016 Rare Impact Awards Honoree

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Becoming a Marathon Runner

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Eleven Major Patient Groups Outline Joint Position on Health Care Reform

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NORD Issues Statement Opposing the Preserving Employee Wellness Programs Act (H.R.1313)

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NORD and Neurology Reviews Publish Special Report

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Maria Kefalas, Ph.D.: 2018 Rare Impact Award Honoree

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