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#UndiagnosedLife: An Ode to My Wingman on My Diagnostic Odyssey

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Guest Blog: Trusting What I Knew About My Body

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A Conversation on Drug Development for Rare Diseases

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Engineering Treatments for Rare Disorders

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Illinois Man Uses His Myelofibrosis Story to Help Others

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The Will to Live and the Strength for a Cure

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The Will to Live and the Strength for a Cure

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The Will to Live and the Strength for a Cure

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Rare Disease Day: Riaan’s Story

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Final Inflation Reduction Act Guidance Risks Stifling Innovation for Rare Disease Community

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The Fight for a Cure for Duchenne

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CDISC and NORD Partner to Develop Data Standards for Rare Diseases

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Member Spotlight: LGDA

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Member Spotlight: FIRST

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NORD Students for Rare Member Provides Her Perspective on “Unlocking the Power of Health Care Data” Summit Panel

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Accelerating Access to Information for the Rare Disease Community 

Sponsored Clinical Trial

Myasthenia Gravis

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Be a Hero: Help NORD Empower the Rare Disease Community in Washington D.C. and in all 50 States.

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2024 NORD Living Rare Forum and Rare Impact Awards Highlights

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Advocacy Alert: Illinois Edges Closer to Establishing Rare Disease Commission

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Dr. Stephen Cederbaum: 2016 Rare Impact Award Honoree

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NORD CEO Statement in Response to CMS Rule for Medicaid Community Engagement Requirements

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FDA Commissioner Dr. Robert Califf to Speak at NORD Summit in October

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A Group No One Applies to Join

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The Most Important Holiday Most Don’t Know: Celebrating Rare Disease Day

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