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Richard Pazdur, M.D.: 2018 Public Health Leadership Award Honoree

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Moving documentary on Joshua Frase Foundation, Nibs – the matriarch of the first ever MTM dog colony, and the power of patient advocacy

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NORD Invites Video Submissions on Advocacy Experience

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Highlights from Rare Disease Day 2025

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Three Big Reasons Not to Miss the 2018 NORD Rare Summit

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Chat, Chew, and Be Challenged! Lunchtime Learning at the NORD Rare Summit

Event

Rare Cancer Coalition Reception, October 18

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Georgia Becomes 22nd State to Establish a Rare Disease Advisory Council

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New Community Survey Findings from NORD Reveal Significant Impact of COVID-19 on Americans Living with Rare Diseases

Resource

Herramientas de RareLaunch (Taller de Diciembre 2020)

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Voices of Rare Cancer: Jan’s Story

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NORD and FDA Co-Host Public Listening Session, Focusing on COVID-19 and Rare Diseases

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Head of the Herd: Lanie Etkind, Executive Director, Familial Dysautonomia Foundation

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