News Newborn Screening: The HCP Perspective on the Importance of Confirmatory Testing and Collaboration
News FDA CBER Director Dr. Vinay Prasad to Keynote NORD’s Inaugural Rare Disease Scientific Symposium, Convening Top Researchers, Industry Leaders, and Federal Regulators
News NORD Breakthrough Summit Features Bold New Ideas for the Future of Rare Disease Care, Policy and Research
News NORD’s RareLaunch Program Announces Expanded Course Learning to Help Launch and Grow Rare Disease Nonprofits
News Guest Blog: The Power of the Pack — New Rare Cancer Initiative Hopes Collaboration Will Lead to Cures
Policy Statement NORD Sends Letter to Bipartisan Senate Hearing Titled, “Biomedical Research: Keeping America’s Edge in Innovation”
News ACD and NORD Launch the CreatineInfo Registry and Natural History Study of Cerebral Creatine Deficiency Syndromes
Resource How To Advocate For Rare Disease-Related Policies: A Guide for Professionals Involved in Diagnosis, Care, or Research of Rare Diseases
Event Cystinosis Research Network (CRN) Scientific Symposium: Advancing the Future of Cystinosis Care
