News Guest Blog: The Power of the Pack — New Rare Cancer Initiative Hopes Collaboration Will Lead to Cures
Policy Statement NORD Sends Letter to Bipartisan Senate Hearing Titled, “Biomedical Research: Keeping America’s Edge in Innovation”
News ACD and NORD Launch the CreatineInfo Registry and Natural History Study of Cerebral Creatine Deficiency Syndromes
Resource How To Advocate For Rare Disease-Related Policies: A Guide for Professionals Involved in Diagnosis, Care, or Research of Rare Diseases
Event Cystinosis Research Network (CRN) Scientific Symposium: Advancing the Future of Cystinosis Care
News A Joint Op-Ed from NORD and Friends of Cancer Research: Despite Criticism, FDA is Doing What is Right By Rare Cancer Patients
News Giving Spotlight: Elizabeth and Chris Honor Son, Obie, with Donations to NORD, a Favorite Charity
News NORD Releases Report on the State of Rare Disease Diagnosis, Care and Treatment in America Over Three Decades
