News ACD and NORD Launch the CreatineInfo Registry and Natural History Study of Cerebral Creatine Deficiency Syndromes
Resource How To Advocate For Rare Disease-Related Policies: A Guide for Professionals Involved in Diagnosis, Care, or Research of Rare Diseases
Event Cystinosis Research Network (CRN) Scientific Symposium: Advancing the Future of Cystinosis Care
News A Joint Op-Ed from NORD and Friends of Cancer Research: Despite Criticism, FDA is Doing What is Right By Rare Cancer Patients
News Giving Spotlight: Elizabeth and Chris Honor Son, Obie, with Donations to NORD, a Favorite Charity
News NORD Releases Report on the State of Rare Disease Diagnosis, Care and Treatment in America Over Three Decades
News NORD Applauds House Energy and Commerce Committee Advancement of Bipartisan Legislation to Support Rare Disease Patient Access to Care and Treatment
