Policy Statement NORD joins 122 other organizations in advocating for increased funding for Congressionally Directed Medical Research Programs (CDMRP)
News Five Years of Patient Registry Success: NORD’s IAMRARE™ Registry Program Celebrates New Partnerships and Models of Engagement
Policy Statement Coalition letter to Congress regarding medical research within the fiscal year 2019 National Defense Authorization Act
Policy Statement Coalition letter asking Congress to reauthorize the Patient-Centered Outcomes Research Institute
News The Cute Syndrome Foundation and NORD Launch The Cute Syndrome Foundation Global SCN8A Survey Series
News NORD Announces Four Patient Organizations to Join the IAMRARE Community and Submit Data to RDCA-DAP
News NORD Releases Report on the State of Rare Disease Diagnosis, Care and Treatment in America Over Three Decades
News NORD Applauds House Energy and Commerce Committee Advancement of Bipartisan Legislation to Support Rare Disease Patient Access to Care and Treatment
News Giving Spotlight: Elizabeth and Chris Honor Son, Obie, with Donations to NORD, a Favorite Charity
