Search Results for: zcat_search_results

News

After Two Centuries, the Parry Romberg Syndrome Community Needs Answers

News

The Cute Syndrome Foundation and NORD Launch The Cute Syndrome Foundation Global SCN8A Survey Series

News

Head of the Herd: Emile Najm, KAT6A Foundation

News

NORD Announces Four Patient Organizations to Join the IAMRARE Community and Submit Data to RDCA-DAP

News

Head of the Herd: Susan Thornton, CEO, Cutaneous Lymphoma Foundation

Resource

Rare Cancers: Breaking Down Barriers to Diagnosis, Treatment and Research

News

Personalized medicine helps treat toddler with rare disease

Event

Charcot-Marie-Tooth Association (CMTA) 2026 Patient & Research Summit

News

FDA Oncology Center of Excellence Listening Session with NORD: A Patient Perspective

News

Zane’s Diagnostic Odyssey: His Mother’s Story in Honor of Undiagnosed Day

News

Rare Resilience: Tracey’s Story in Honor of Rare Disease Day

Webpage

Advancing Research

Patient Organization

Benign Essential Blepharospasm Research Foundation, Inc

Patient Organization

ASXL Rare Research Endowment (ARRE) Foundation

Patient Organization

Superficial Siderosis Research Alliance, Inc.

Patient Organization

Amyloidosis Research Consortium, Inc. (ARC)

Webpage

Find Clinical Trials & Research Studies

Webpage

Research Grant Programs

Webpage

Becoming Research Ready

Webpage

Information on Clinical Trials & Research Studies

Patient Organization

National Research Center for Career and Technical Education

Patient Organization

MHE Research Foundation

Patient Organization

Ring20 Research and Support UK

Patient Organization

Benign Essential Blepharospasm Research Foundation, Inc.

Patient Organization

Dystonia Medical Research Foundation

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