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Share Your Story

NORD invites you to share your story. Join the individuals and families who have contributed their personal accounts of living with rare diseases. Alone we are rare. Together we are strong!

In order to submit a story, please review the story-telling tips and campaign guidelines to see what opportunities we currently have, then proceed with submitting your story by using the form at the bottom of this webpage.

Story-Telling Tips & Content Guidelines

Story-Telling Tips

  • General story submissions should be about 500-1000 words
  • Include a photo or video to personalize your story
  • Don’t be afraid to bring your own personality into the story
  • Try to explain things in a way that anyone can understand with any level of prior knowledge
  • Use complete sentences
  • Review our content guidelines for more information on our active campaigns
  • Video Recording Tips – Learn more…

      Please feel free to use a camera, laptop or smart phone with video recording capabilities. If using a cell phone, be sure to shoot your video horizontally (landscape mode) not vertically (portrait mode).


      You should be somewhat close to the camera, with perhaps from your chest up visible in the shot.


      It helps if you mount your camera or phone on a tripod or a stand but is not necessary. Even steadying it against some books can be useful.


      Record your video in a quiet space for better audio quality.


      A well lit room helps. Sit facing a sheer white curtain with sunlight coming through if you can. This creates better lighting than direct sunlight through no curtains.

Content Guidelines

The submission form below currently includes the following campaigns:

  • General – These stories highlight an individual’s rare disease journey and if selected are featured on the NORD blog, social media and more.
  • COVID-19 Relief Award Recipient – Share your story and what it means to have received a NORD COVID-19 relief program award.
  • NORDpod Guest Interest
  • Share your story with the rare community ahead of Rare Cancer Day.