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Dec. 17, 2020

TOPIC: Featured News, Patients & Members, Advocacy, #NORDintheNews

STAT Features NORD in Article on the Continued Threat PPE Shortages Pose to Some Rare Disease Patients

Posted by Valaree DonFrancesco

In a 12.16.2020 article from STAT on how shortages of protective gear pose a continued threat to some rare disease patients, NORD’s COVID-19 Community Survey Report is highlighted and NE Rare Action Network’s Aimee Guarnieri and NY Rare Action Network’s Mary Wooten are interviewed. Also interviewed in the piece is Lauren Ruotolo, president of the FD/MAS Alliance, a NORD member organization.

Read the article in its entirety: