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Archives for: April 25th, 2018

A Message from Our President and CEO

Written by Christina Jensen on December 20, 2016

“When you are faced with a difficult health challenge, you need to be able to turn to a trusted source for support and advice – much like many people battling rare diseases have turned to NORD in the past 33 years.

NORD will keep fighting to eradicate the… Read More

President Signs 21st Century Cures Medical Innovation Bill Into Law

Written by Jennifer Huron on December 13, 2016

president-signs-21st-cent-curesToday, President Obama signed into law the 21st Century Cures Act, a game-changing bill for medical innovation.  The bill includes many provisions that will improve the discovery, development, and delivery of orphan therapies for rare disease patients, including:

Senate Passes Landmark 21st Century Cures Act

Written by Jennifer Huron on December 7, 2016

Senate Passes Landmark 21st Century Cures Act

us-senateWashington, D.C., December 7, 2016—Today, the United States Senate overwhelmingly approved the 21st Century Cures Act, a game-changer for medical innovation, by a bipartisan vote of 94-5. The President is expected to… Read More

House to Vote on New Version of 21st Century Cures Act Tomorrow

Written by Jennifer Huron on November 29, 2016

We are excited to announce that U.S. lawmakers have finally reached an agreement on the 21st Century Cures Act, a game-changer for patients with rare diseases. This agreement comes more than one year after the House passed its original version of the bill. The first vote is expected to take place… Read More