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Archives for: January 18th, 2022

NORD Gives Back: Working, Aging or Living with a Rare Disease

Written by Maia Craig on January 18, 2022

After being diagnosed with a rare disease, your life can change drastically. The National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021 virtual Living Rare, Living Stronger Patient and Family Forum to inspire hope for those affected by rare diseases and their families.   Read More

Tara Z’s Story in Honor of Rare Disease Day

Written by Valaree DonFrancesco on February 22, 2021

I was diagnosed with stiff person syndrome (SPS) on a Monday night in October of 2017. The impact of my condition on my life has been tremendous. My symptoms started after I lost my former husband to suicide in 2014. My kids were eleven and… Read More