Scroll
To Top

Archives for: January 23rd, 2019

10 Ways to Show Your Stripes this Rare Disease Day!

Written by Christina Jensen on January 23, 2019
rare disease day show your stripes campaign

The zebra, with its distinctive stripes, is the official symbol of rare diseases in the United States. While each of the more than 7,000 rare diseases is unique, there are many commonalities that unite our community. To raise awareness around rare disease issues, NORD is promoting specific ways that individuals,… Read More

Running on Air for Rare Disease Day

Written by Lisa Sencen on February 11, 2016

“I want to shake up what people think is possible,” says Mary Kitlowski – “ both people with rare diseases, and people without. If I can make a difference by doing it, it makes it worth it.”

Mary has taken on what for most seems insurmountable – running races… Read More