infographic Archives - NORD (National Organization for Rare Disorders)

New Patient Journey Infographic Gives A Glimpse Into The Diagnostic Odyssey

Written by Valaree DonFrancesco on April 29, 2021

The road to a correct rare disease diagnosis is far too long. This Undiagnosed Day, please share this infographic with your community and if you, or someone you know, is in need of information or resources to assist you on your… Read More

Infographic Illustrates Effects of the COVID-19 Pandemic on Rare Disease Patients and Families

Written by Valaree DonFrancesco on May 7, 2020

NORD’s recently released COVID-19 Community Survey Report reveals the far-reaching impact the pandemic is having on rare patients and families. 772 participants responded to the survey conducted by NORD’s research team from April 1 through April 8, 2020. Respondents represent 49 of 50 states and Washington,… Read More

Archives for: April 29th, 2021

New Patient Journey Infographic Gives A Glimpse Into The Diagnostic Odyssey

Written by Valaree DonFrancesco on April 29, 2021

Infographic Illustrates Effects of the COVID-19 Pandemic on Rare Disease Patients and Families

Written by Valaree DonFrancesco on May 7, 2020

Alone we are rare. Together we are strong.®