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Archives for: October 29th, 2020

NORD and KrabbeConnect Launch KrabbeCURES to Study Globoid Cell Leukodystrophy

Written by Laura Mullen on September 21, 2020

Krabbe Community United Research and Engagement Study (KrabbeCURES)

We are pleased to announce the launch of KrabbeCURES, a collaborative effort between KrabbeConnect and the National Organization for Rare Disorders (NORD) to study globoid cell leukodystrophy (Krabbe disease). KrabbeCURES supports research on Krabbe disease and how it progresses over time.


CZI Grants to NORD and EURORDIS Support Organizational Capacity Building and Rare Disease Day Campaigns

Written by Laura Mullen on July 16, 2020

Today, the Chan Zuckerberg Initiative (CZI) announced $1.3 million in funding to support the global rare disease community through two distinct grants to NORD and EURORDIS-Rare Diseases Europe. These grants will support organizational capacity building programs and awareness campaigns for Rare Disease Day, respectively, and are part of CZI’s… Read More