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Archives for: October 13th, 2021

The Strength of Families

Written by Valaree DonFrancesco on October 13, 2021

On the show today, Aprill Lane is a mother of five and rare disease and infertility advocate — and you do not want to mess with her. She and her husband, Brian, tried to have a baby on their own for 4½ years until they were diagnosed with unexplained infertility. Endless… Read More

Rare Cancer Day 2021: Bryce’s Clear Cell Sarcoma Story

Written by Maia Craig on September 30, 2021

Bryce was able to get diagnosed with clear cell sarcoma (CCS) quickly. He tries not to think about it but finds it virtually impossible because he knows that there is no cure. Originally, his primary care physician thought the mass could be a desmoid tumor but once the CT scan… Read More

NORD Welcomes Aliza Fink, D.Sc. as Director of Research Programs

Written by Rohan Narayanan on September 23, 2021

Washington, DC, September 23, 2021—The National Organization for Rare Disorders (NORD®), the leading patient advocacy organization dedicated to the identification, treatment and cure of rare diseases, announced the appointment of Aliza Fink, D.Sc. as the new Director of Research Programs. Fink, an epidemiologist by trade, brings decades of expertise and… Read More