Scroll
To Top

Archives for: August 15th, 2018

Healthline and NORD Announce Recipients of 2018 Stronger Scholarships

Written by Laura Mullen on August 15, 2018

Washington, D.C., August 15, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, and Healthline Media, the second largest health information site with 90 million monthly visitors, have announced the recipients of the… Read More

Get to know Jill Pollander, NORD’s new Director of Patient Services

Written by Laura Mullen on July 2, 2018

Earlier this month, Jill Pollander joined NORD as Director of Patient Services. Jill has a B.S. in Nursing from Northeastern University and a M.S. in Nursing from University of Phoenix. She brings a great breadth of experience in healthcare to NORD, including working as an emergency… Read More

Last Rare Disease Day Event of 2018 a Success in Pennsylania

Written by Laura Mullen on June 20, 2018

*The following article ran 6/19/2018 via Pennsylvania Legislative Services, an online legislative research, tracking, media, and analysis service providing access to Pennsylvania’s policy making process.

SUPPORTERS, LAWMAKERS CELEBRATE RARE DISEASE AWARENESS DAY

By Derek Snyder, Pennsylvania Legislative Services | June 19, 2018

Dozens of advocates joined… Read More

NORD Meets with HHS Secretary Azar to Discuss Needs of Rare Disease Patients

Written by Laura Mullen on June 15, 2018

Washington, D.C., June 15, 2018—On Wednesday, staff from the National Organization for Rare Disorders (NORD) met with Health and Human Services (HHS) Secretary Alex Azar to discuss the needs of rare disease patients. The meeting covered orphan drug innovation, growing patient involvement at the Food and Drug Administration… Read More