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Archives for: May 20th, 2019

NORD Announces Honorees for 2019 Rare Impact Awards

Written by Christina Jensen on March 12, 2019

Washington, DC, March 12, 2019—The National Organization for Rare Disorders (NORD) today announced the individuals, organizations and industry innovators who will be honored for their outstanding work in support of the rare disease community at this year’s Rare Impact Awards on June 22.

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Patient Registries Webinar: What They Are and How to Start One

Written by Christina Jensen on May 1, 2018

Have you heard of a patient or natural history registry but have no idea what it was? Interested in starting a registry for your patient population but not sure where to start?

We will cover these topics and more in an educational webinar on May 1. NORD’s Research Programs Manager, Suzanne… Read More