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Archives for: January 23rd, 2019

10 Ways to Show Your Stripes this Rare Disease Day!

Written by Christina Jensen on January 23, 2019
rare disease day show your stripes campaign

The zebra, with its distinctive stripes, is the official symbol of rare diseases in the United States. While each of the more than 7,000 rare diseases is unique, there are many commonalities that unite our community. To raise awareness around rare disease issues, NORD is promoting specific ways that individuals,… Read More

Tweetchat on Genetic Testing, #genetest101

Written by Christina Jensen on July 13, 2017

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When: Thursday, July 13, 2:00 p.m. – 3:00 p.m. ET
Tweetchat Hashtag:… Read More

Tweetchat on Pediatric Cancers, #KidsCancerChat

Written by Christina Jensen on September 21, 2016

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September is Pediatric Cancer Awareness Month. Did you know that all pediatric cancers are rare?

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Today is Rare Disease Day 2015

Written by Christina Jensen on February 28, 2015

Rare Disease Day is here!  Celebrated on the last day of February–the rarest day on the calendar–this is the one day every year when the world comes together to improve the lives of people living with rare diseases.

NORD is proud to work with our partners as the official sponsor of… Read More