Written by Lisa Sencen on January 23, 2019
The zebra, with its distinctive stripes, is the official symbol of rare diseases in the United States. While each of the more than 7,000 rare diseases is unique, there are many commonalities that unite our community. To raise awareness around rare disease issues, NORD is promoting specific ways that individuals,… Read More
Written by Lisa Sencen on June 26, 2015
Rare diseases earned some time in the national spotlight this week, thanks to two new articles that People magazine posted on its website.
Randy Rogers, lead-act in the Randy Rogers Band, lost his 6-day-old baby girl, Rumer, to Nonketotic… Read More
Written by Lisa Sencen on February 28, 2015
Rare Disease Day is here! Celebrated on the last day of February–the rarest day on the calendar–this is the one day every year when the world comes together to improve the lives of people living with rare diseases.
NORD is proud to work with our partners as the official sponsor of… Read More