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Archives for: October 1st, 2019

Rare Cancer Day 2019

Written by Lisa Sencen on October 1, 2019

NORD’s Rare Cancer Coalition is the only united group of rare cancer advocacy organizations in the United States. The objective of the coalition is to form a close-knit, multi-stakeholder community to work collaboratively on issues that the greater rare cancer community faces.

In 2019, the coalition will host the first Rare… Read More

Voices of Rare Cancer: Paul’s Story

Written by Laura Mullen on September 13, 2019

Looking back, my symptoms started as early as age 10. I lived in a heightened state of anxiety, and every day stresses seemed to become gradually more unmanageable. I didn’t know what was normal, so I just figured that was what growing up felt like. Over the next… Read More

Mark Your Calendars – October 1 is Rare Cancer Day!

Written by Laura Mullen on August 21, 2019

Washington, DC, August 29, 2019–The National Organization for Rare DisordersⓇ (NORD) has announced a day devoted to raising awareness about rare cancers. Spearheaded by the NORD Rare Cancer Coalition, which is comprised of 24 rare cancer-specific Member Organizations, Rare Cancer Day will be observed on October 1 to… Read More