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Archives for: September 30th, 2022

Honoring Steven Matthews This Rare Cancer Day

Written by Rohan Narayanan on September 30, 2022

September 30 is #RareCancerDay, an annual awareness day devoted to shining a light on rare cancers and the issues people living with them face. NORD is highlighting the stories of the rare cancer community – learn more.

The Chondrosarcoma Foundation is sharing the story of firefighter Steven Mathews in… Read More

Rare Cancer Day 2022 Showcases Critical Community Awareness and Advocacy

Written by Rohan Narayanan on September 28, 2022

Washington, DC, September 28, 2022— This week, the rare disease community will celebrate the fourth annual Rare Cancer Day. Spearheaded by the National Organization for Rare Disorders (NORD®) Rare Cancer Coalition™, Rare Cancer Day is observed on September 30 to highlight the challenges patients with rare cancers face… Read More

Unanswered Questions: Leah’s Rare Cancer Story

Written by Julie Ostroff on September 16, 2022

My life has been completely altered by rare diseases, specifically rare cancer. During my pregnancy with my 2nd child, I had stage IV sarcoma. Doctors were unable to tell me the effect it had on my baby or how long I had to live. I had so many unanswered… Read More