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Archives for: September 22nd, 2020

NORD Reaches 300 Members!

Written by Laura Mullen on January 20, 2020

At NORD we are extremely proud to welcome our 300th member organization! Our Odyssey is a national nonprofit supporting chronic and rare disease young adult patients by providing social and emotional support in the hope of improving their quality… Read More

Voices of Rare Cancer: Paul’s Story

Written by Laura Mullen on September 13, 2019

Looking back, my symptoms started as early as age 10. I lived in a heightened state of anxiety, and every day stresses seemed to become gradually more unmanageable. I didn’t know what was normal, so I just figured that was what growing up felt like. Over the next… Read More

Mark Your Calendars – October 1 is Rare Cancer Day!

Written by Laura Mullen on August 21, 2019

Washington, DC, August 29, 2019–The National Organization for Rare DisordersⓇ (NORD) has announced a day devoted to raising awareness about rare cancers. Spearheaded by the NORD Rare Cancer Coalition, which is comprised of 24 rare cancer-specific Member Organizations, Rare Cancer Day will be observed on October 1 to… Read More