Scroll
To Top

Archives for: October 10th, 2019

FDA Public Workshop: Partners in Progress 2019 – Cancer Patient Advocates and FDA!

Written by Valaree DonFrancesco on October 8, 2019

The workshop objective is to provide basic training on the role of the FDA and cancer patient advocates in oncology product development. This broad introduction to FDA regulatory aspects of oncology product development is most relevant to attendees with limited knowledge and experience in cancer product development and patient advocacy.  Lunch… Read More

Voices of Rare Cancer: Lisa’s Story

Written by Valaree DonFrancesco on October 1, 2019

Life was busy in 2010 with work, volunteering and engaging with our sons’ sports schedules. Being tired was just part of our eventful lifestyle. Consequently, when we received my diagnosis of stage IV intrahepatic cholangiocarcinoma at the age of 46, we were shocked. We believed we were investigating… Read More

Voices of Rare Cancer: Brian’s Story

Written by Valaree DonFrancesco on October 1, 2019

WHAM! The news I received from my doctor was a left hook to my temple thrown by Muhammad Ali. I was just told that I had myelodysplastic syndromes (MDS). My name is Brian. It was December 2016 and my doctor at Moffitt Cancer Center in Tampa Florida, Dr. David Sallman,… Read More

Voices of Rare Cancer: Susan’s Story

Written by Valaree DonFrancesco on October 1, 2019

Hi! I’m Susan from Philadephia. My journey began in 1991 when I visited a local dermatologist for a strange rash that didn’t go away. That day changed my life. A biopsy was taken and I was told I had a rare form of lymphoma called cutaneous T-cell, mycosis fungoides.

CTCL/MF is… Read More