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Archives for: November 21st, 2022

Highlights from the 2022 NORD Breakthrough Summit

Written by Rohan Narayanan on November 1, 2022
Three people stand in front of the NORD logo - Peter Saltonstall, Robert Califf, and Pam Gavin

Last month, more than 830 enthusiastic attendees gathered in-person (and many more virtually) for the 2022 NORD Rare Diseases and Orphan Products Breakthrough Summit to address and take action on the opportunities and challenges facing the rare disease community. Here are a few highlights:

FDA Commissioner Presents Keynote Address

FDA Commissioner Robert… Read More

Honoring Steven Matthews This Rare Cancer Day

Written by Rohan Narayanan on September 30, 2022

September 30 is #RareCancerDay, an annual awareness day devoted to shining a light on rare cancers and the issues people living with them face. NORD is highlighting the stories of the rare cancer community – learn more.

The Chondrosarcoma Foundation is sharing the story of firefighter Steven Mathews in… Read More

Rare Cancer Day 2022 Showcases Critical Community Awareness and Advocacy

Written by Rohan Narayanan on September 28, 2022

Washington, DC, September 28, 2022— This week, the rare disease community will celebrate the fourth annual Rare Cancer Day. Spearheaded by the National Organization for Rare Disorders (NORD®) Rare Cancer Coalition™, Rare Cancer Day is observed on September 30 to highlight the challenges patients with rare cancers face… Read More