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Archives for: July 16th, 2020

CZI Grants to NORD and EURORDIS Support Organizational Capacity Building and Rare Disease Day Campaigns

Written by Laura Mullen on July 16, 2020

Today, the Chan Zuckerberg Initiative (CZI) announced $1.3 million in funding to support the global rare disease community through two distinct grants to NORD and EURORDIS-Rare Diseases Europe. These grants will support organizational capacity building programs and awareness campaigns for Rare Disease Day, respectively, and are part of CZI’s… Read More

Massachusetts Rare Disease Day Community Event 2020

Written by Sean Roberts on March 4, 2020

Wednesday, March 4, 2020 from 6:00pm – 8:00pm 
The Pollard Library, 401 Merrimack St, Lowell, MA 01852
Massachusetts Rare Action Network invites you to connect with patients, families, caregivers, medical professionals and… Read More

Illinois Rare Disease Day 2020

Written by Sean Roberts on March 4, 2020
Illinois Rare Disease Day
Wednesday, March 4, 2020 from 9:00am-12:00pm
State House Inn, 101 E Adams St, Springfield, IL 62701
Join patients,… Read More