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Archives for: April 25th, 2018

Another Successful Rare Disease Day®

Written by Christina Jensen on March 7, 2018

Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day® in 2018.  On this day, everyone RDD-LOGO-18-stickycomes together globally to bring attention to all 7,000 rare diseases that combined affect 30… Read More

NORD Rare Disease Day Tweetchat

Written by Christina Jensen on February 28, 2018
In celebration of Rare Disease Day 2018, NORD will moderate a tweetchat on the important topic “What To Do If You or Your Child Receive a Rare Disease Diagnosis” with co-hosts Boston Children’s Hospital and The Mighty.
Join us! The tweetchat is an opportunity for patients, experts, doctors, the rare disease community… Read More

Join Us for Rare Disease Day®

Written by Christina Jensen on December 21, 2017
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Protecting Your Healthcare Coverage

Written by Christina Jensen on September 26, 2017

The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.

Before the Affordable Care Act was enacted in 2010, rare disease patients faced discriminatory insurance practices due to their pre-existing condition. Patients… Read More