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Archives for: August 16th, 2017

Protecting Your Healthcare Coverage

Written by Christina Jensen on August 16, 2017
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The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.

Before the Affordable Care Act was enacted in 2010, rare disease patients faced discriminatory insurance practices due to their pre-existing condition. Patients… Read More

NORD Issues Statement on President Trump’s Address to Congress

Written by Jennifer Huron on March 1, 2017

NORD Issues Statement on President Trump’s Address to Congress

Washington, D.C., March 1, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to President Trump’s first speech to Congress:

“Yesterday evening, President Trump… Read More

NORD & ABC News Rare Disease Day Tweetchat

Written by Christina Jensen on February 28, 2017

In celebration of Rare Disease Day®, NORD will co-host a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News Medical/Health Unit. The tweetchat will take place on Tuesday, Feb. 28, 2017 at 1:00 p.m. EST.

This is the fourth annual tweetchat that ABC… Read More

NORD Awards New Research Grants for Rare Disease Research

Written by Jennifer Huron on February 24, 2017
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Washington, D.C.—February 24, 2017—The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has awarded seven new research grants to fund rare disease research.

Research grants awarded for 2016 Requests for Proposals include:

For the study of Alveolar Capillary… Read More