Rare Disease Day Archives - NORD (National Organization for Rare Disorders)

NORD Releases 2019 Annual Report, “At the Heart of Progress in Rare Disease”

Written by Laura Mullen on March 31, 2020

During times of crisis we are once again reminded of how honored we are to fight for and alongside the rare disease community. Our rare herd is composed of remarkable individuals who truly embody our motto: Alone we are rare. Together we are strong.

We hope you… Read More

Rare Disease Day 2020 and the Mission I Choose to Accept, by Debbie Drell, Director of Membership for NORD

Written by Laura Mullen on March 11, 2020

If you or someone you love is diagnosed with a rare disease, you might find yourself on a very quick learning curve about the disease (or about the lack of information on the disease, or trying to even get to an accurate diagnosis!). The number one priority for… Read More

Massachusetts Rare Disease Day Community Event 2020

Written by Sean Roberts on March 4, 2020

Wednesday, March 4, 2020 from 6:00pm – 8:00pm
The Pollard Library, 401 Merrimack St, Lowell, MA 01852

Massachusetts Rare Action Network invites you to connect with patients, families, caregivers, medical professionals and… Read More

Illinois Rare Disease Day 2020

Written by Sean Roberts on March 4, 2020

Illinois Rare Disease Day

Wednesday, March 4, 2020 from 9:00am-12:00pm

State House Inn, 101 E Adams St, Springfield, IL 62701

Join patients,… Read More

Los Angeles, California Rare Disease Day 2020

Written by Sean Roberts on March 1, 2020

California Rare Action Network Rare Disease Day 2020

Sunday, March 1 at 12:30pm

Los Angeles Clippers present NORD as Non-Profit of the game
at the Staples Center, 1111 S Figueroa Street, Los Angeles, CA 90015

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Archives for: March 31st, 2020

NORD Releases 2019 Annual Report, “At the Heart of Progress in Rare Disease”

Written by Laura Mullen on March 31, 2020

Rare Disease Day 2020 and the Mission I Choose to Accept, by Debbie Drell, Director of Membership for NORD

Written by Laura Mullen on March 11, 2020

Massachusetts Rare Disease Day Community Event 2020

Written by Sean Roberts on March 4, 2020

Illinois Rare Disease Day 2020

Written by Sean Roberts on March 4, 2020

Los Angeles, California Rare Disease Day 2020

Written by Sean Roberts on March 1, 2020

California Rare Action Network Rare Disease Day 2020

Sunday, March 1 at 12:30pm

Los Angeles Clippers present NORD as Non-Profit of the game
at the Staples Center, 1111 S Figueroa Street, Los Angeles, CA 90015

Alone we are rare. Together we are strong.®

Archives for: March 31st, 2020

NORD Releases 2019 Annual Report, “At the Heart of Progress in Rare Disease”

Written by Laura Mullen on March 31, 2020

Rare Disease Day 2020 and the Mission I Choose to Accept, by Debbie Drell, Director of Membership for NORD

Written by Laura Mullen on March 11, 2020

Massachusetts Rare Disease Day Community Event 2020

Written by Sean Roberts on March 4, 2020

Illinois Rare Disease Day 2020

Written by Sean Roberts on March 4, 2020

Los Angeles, California Rare Disease Day 2020

Written by Sean Roberts on March 1, 2020

California Rare Action Network Rare Disease Day 2020

Sunday, March 1 at 12:30pm

Los Angeles Clippers present NORD as Non-Profit of the game at the Staples Center, 1111 S Figueroa Street, Los Angeles, CA 90015

Alone we are rare. Together we are strong.®

Los Angeles Clippers present NORD as Non-Profit of the game
at the Staples Center, 1111 S Figueroa Street, Los Angeles, CA 90015