Protecting Your Healthcare Coverage
Written by Christina Jensen on August 16, 2017
The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.
NORD Issues Statement on President Trump’s Address to Congress
Written by Jennifer Huron on March 1, 2017
NORD Issues Statement on President Trump’s Address to Congress
Washington, D.C., March 1, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to President Trump’s first speech to Congress:
“Yesterday evening, President Trump… Read More
NORD & ABC News Rare Disease Day Tweetchat
Written by Christina Jensen on February 28, 2017
In celebration of Rare Disease Day®, NORD will co-host a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News Medical/Health Unit. The tweetchat will take place on Tuesday, Feb. 28, 2017 at 1:00 p.m. EST.
This is the fourth annual tweetchat that ABC… Read More
NORD Unveils “Do Your Share for Rare,” Year-long Campaign for Rare Disease Public Awareness
Written by Jennifer Huron on February 28, 2017
Danbury, Conn., February 28, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, announced a year-long awareness campaign for rare disease.
Kicking off today—Rare Disease Day 2017—“Do… Read More
NORD Awards New Research Grants for Rare Disease Research
Written by Jennifer Huron on February 24, 2017
Washington, D.C.—February 24, 2017—The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has awarded seven new research grants to fund rare disease research.
Research grants awarded for 2016 Requests for Proposals include:
For the study of Alveolar Capillary… Read More