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Archives for: March 6th, 2019

Rare Disease Day 2019 Notes and Successes

Written by Christina Jensen on March 6, 2019

This year, NORD launched the #ShowYourStripes awareness campaign in time for Rare Disease Day (RDD) with a goal of increasing attention on rare diseases and engaging our community. Judging by the number of events, attendance at events, extensive media coverage, robust social media engagement and beyond, NORD is very proud… Read More

10 Ways to Show Your Stripes this Rare Disease Day!

Written by Christina Jensen on January 23, 2019
rare disease day show your stripes campaign

The zebra, with its distinctive stripes, is the official symbol of rare diseases in the United States. While each of the more than 7,000 rare diseases is unique, there are many commonalities that unite our community. To raise awareness around rare disease issues, NORD is promoting specific ways that individuals,… Read More

NORD Issues New Rare Disease DayⓇ Rallying Cry: Show Your Stripes™!

Written by Christina Jensen on January 16, 2019

Washington, DC, January 16, 2019–The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced a new campaign for Rare Disease Day centering on three simple words: Show Your Stripes, with a call to action for… Read More