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Archives for: August 15th, 2017

Advance the Dialogue at the NORD Rare Summit

Written by Christina Jensen on August 15, 2017
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It has been an interesting year for healthcare reform and the Orphan Drug Act, and as I’m sure you are aware; the conversation isn’t over yet. Major changes to healthcare and tax reform continue to be discussed and that is why it is so important that now, more than ever, rare… Read More

President Signs 21st Century Cures Medical Innovation Bill Into Law

Written by Jennifer Huron on December 13, 2016

president-signs-21st-cent-curesToday, President Obama signed into law the 21st Century Cures Act, a game-changing bill for medical innovation.  The bill includes many provisions that will improve the discovery, development, and delivery of orphan therapies for rare disease patients, including: