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Dec. 16, 2020

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Welcome to the NORD Rare Cancer Coalition

Posted by Valaree DonFrancesco

On the show today, we’re talking all things rare cancer and highlighting the incredible impact that NORD’s Rare Cancer Coalition has made since it was founded — by our two guests: John Hopper President of the Board of the Fibrolamellar Cancer Foundation and Founding Chairman of the GI Cancer Alliance AND Jim Palma, Executive Director at the Target Cancer Foundation and Vice Chairman of the Board of Directors at NORD. There’s no profit I rare anything. Industry’s gotta recoup their costs by making it up in volume with all the big fancy cancers that get all the attention. Without entrepreneurial and philanthropic efforts by heroes like Jim and John, there would be no progress in the advocacy, research, and support resources for hundreds of thousands. So, to regroup, Why does NORD have a Rare Cancer Coalition? What does it do? Who are their members? How can you join? Is rare cancer considered a rare disease? All those questions and more on the program; because it’s not always about what we have, it’s about what we all have in common. Learn more about the NORD Rare Cancer Coalition here.

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