Statement by National Organization for Rare Disorders CEO, Pamela Gavin, on Congress’s Exclusion of Critical Rare Disease Bills in the Continuing Resolution
Categorized in -
For the last several years, the National Organization for Rare Disorders (NORD) has had the privilege of working in close collaboration with Members of Congress from both sides of the … Continue reading "Kinesin Family Member 5A (KIF5A)-Related Disorder"...
Read article
