Published December 2, 2015 by NORD
Education has always been a key component of NORD’s mission and this year we expanded our outreach to two vitally important audiences – medical professionals and students preparing for health-related …
Continue reading “Be a Hero: Help NORD Educate Current and Future Medical Professionals”
Read morePublished November 9, 2015 by NORD
Laurie and Chuck Eallonardo were thrilled at the birth of their twins, Jenna and Caden. Laurie felt happy and relieved that she had been able to carry them for 38 …
Continue reading “Giving Spotlight: Parents Thank NORD for Saving Daughter’s Life”
Read morePublished October 22, 2015 by NORD
Announcing NORD’s State Progress Report, a Roadmap for State Improvement.
Read morePublished October 12, 2015 by NORD
Date: February 29, 2016 Global Theme: Patient Voice Global Slogan: Join us in making the voice of rare diseases heard By definition, each rare disease affects a small segment of …
Continue reading “Raise Your Voice: Rare Disease Day 2016 is Coming”
Read morePublished October 5, 2015 by NORD
While the approximately 7,000 known rare diseases run the full spectrum of symptoms and experience, rare disease patients encounter many common obstacles. Rare patients face incredible difficulty finding safe and …
Continue reading “The Undiagnosed: Orphans of the Rare Disease Community”
Read morePublished September 16, 2015 by NORD
Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard It’s here! As the official sponsor and host of Rare Disease Day in the U.S., NORD …
Continue reading “Rare Disease Day 2016 Theme and Slogan Announced!”
Read morePublished September 16, 2015 by NORD
Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard As the official sponsor and host of Rare Disease Day in the U.S., NORD is excited …
Continue reading “Rare Disease Day 2016 Theme and Slogan Announced”
Read morePublished September 2, 2015 by NORD
A few months ago, NORD and our members hosted a “Meet the Patients” event at the annual conference of the American Medical Student Association (AMSA). We were thrilled with the …
Continue reading “NORD’S Free Student Membership: Sign up Today!”
Read morePublished July 29, 2015 by NORD
Miss Iron County explains how she supports rare disease advocacy and awareness during a Miss Utah competition.
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