Published July 27, 2026 by NORD
By: Anaheeta Z. Kolah Big title, isn’t it? Most politically ambitious, life-altering laws are. Think of the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA) as the Costco warehouse …
Read morePublished February 23, 2026 by NORD
Nationwide initiative encourages health-care providers to boost rare-disease knowledge and early diagnosis BOSTON and NORWELL, Mass., FEB 23, 2026 – In recognition of Rare Disease Day, the National Organization for Rare Disorders (NORD®) …
Read morePublished January 6, 2026 by NORD
Partnership focuses on delivering high-quality medical education to improve rare disease patient outcomes BOSTON AND WASHINGTON, D.C., January 6, 2026 – Medlive and the National Organization for Rare Disorders® are …
Continue reading “NORD Extends Exclusive CME Partnership with Medlive”
Read morePublished October 6, 2025 by NORD
The NORD Rare Disease Scientific Symposium brought together a dynamic community of rare disease clinicians, researchers, and thought leaders for an unforgettable gathering of ideas, insights, and inspiration. If you missed …
Continue reading “NORD Scientific Symposium Full Session Recordings Available Now”
Read morePublished August 25, 2025 by NORD
“From Records to Research” empowers patients, caregivers to take control of their health The National Organization for Rare Disorders (NORD®), the leading national nonprofit serving more than 30 million Americans …
Continue reading “NORD Unveils New, Free Data Literacy Course”
Read morePublished August 4, 2025 by NORD
Advait Wattal, a student advocate and NORD State Ambassador, shares how his commitment to public service sparked meaningful action in support of the rare disease community. His story shows the …
Continue reading “Advait Wattal’s Journey to Make a Difference”
Read morePublished June 30, 2025 by NORD
If you’re living with a rare disease — or caring for someone who is — you’ve likely faced the challenge of trying to understand a condition that your doctor hasn’t …
Continue reading “Accelerating Access to Information for the Rare Disease Community ”
Read morePublished April 29, 2025 by NORD
In honor of Undiagnosed Day on April 29, the National Organization for Rare Disorders (NORD) celebrates the health care providers of today and tomorrow who are working to shorten the …
Continue reading “Undiagnosed: Medical Students Work to Change Rare Disease Curriculum”
Read morePublished April 8, 2025 by NORD
The FDA approval of the first treatment for Friedreich’s Ataxia (FA) on Rare Disease Day in 2023 marked a significant milestone for the estimated 5,000 people in the U.S. and …
Continue reading “Guest Blog: The Power of Patient Advocacy in Drug Development”
Read morePublished February 21, 2025 by NORD
New Mental Health Video Series Launches February 24 The National Organization for Rare Disorders (NORD®) is excited to announce a new collaboration with Bionews, a digital health solutions company dedicated …
Read more
Your gift today fuels progress in the lab, in clinics, on Capitol Hill and for rare families who can’t wait another year for answers.
Please complete this form to access the requested resource.