Rare Disease News

NORD, Bionews Partner to Bring Powerful Educational Content to Rare Disease Communities

Published February 21, 2025 by NORD

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New Mental Health Video Series Launches February 24 The National Organization for Rare Disorders (NORD®) is excited to announce a new collaboration with Bionews, a digital health solutions company dedicated …

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Empowering the Rare Disease Community in Drug Development: A New Path Forward

Published November 20, 2024 by NORD

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By Rebecca Aune, NORD Director of Education Programs The rare disease community knows hard truths all too well. Effective treatments are scarce across the thousands of known rare diseases. With …

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Why Should I Get Genetic Testing If I Already Have a Diagnosis?

Published July 10, 2024 by NORD

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Education

New NORD Resources Address this Question The National Organization for Rare Disorders (NORD) has published new animated videos in English and Spanish about why rare disease patients should get genetic …

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Rare Disease News

NORD, Bionews Partner to Bring Powerful Educational Content to Rare Disease Communities

Empowering the Rare Disease Community in Drug Development: A New Path Forward

Why Should I Get Genetic Testing If I Already Have a Diagnosis?

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