Published May 23, 2025 by NORD
WASHINGTON, May 23, 2025 –The National Organization for Rare Disorders (NORD®) will convene leading voices in science, industry, and regulation at its inaugural Rare Disease Scientific Symposium, a two-day conference …
Read morePublished April 4, 2025 by NORD
Fostering collaboration to drive progress in rare disease research By Tracey Sikora, Vice President of Research & Clinical Programs Rare disease research is full of obstacles — small patient populations, …
Continue reading “A Deeper Look at the New NORD Rare Disease Scientific Symposium”
Read morePublished March 11, 2025 by NORD
From parachuting zebras to “Wicked” stars and breaking news from the NORD® Rare Disease Centers of Excellence, we’re thrilled to share our favorite moments from Rare Disease Day 2025! …
Continue reading “Highlights from Rare Disease Day 2025”
Read morePublished February 27, 2025 by NORD
Paramount to match funds donated to NORD in support of new film Novocaine QUINCY, Mass., Feb. 27, 2025 — The National Organization for Rare Disorders (NORD®) is teaming up with Paramount Pictures …
Continue reading “NORD, Paramount Pictures Join Forces to Raise Awareness of Rare Disease”
Read morePublished July 1, 2024 by NORD
On June 7-8 in Los Angeles, California, the National Organization for Rare Disorders (NORD) brought our Living Rare, Living Stronger Patient and Family Forum and Rare Impact Awards to the …
Continue reading “2024 NORD Living Rare Forum and Rare Impact Awards Highlights”
Read morePublished April 22, 2024 by NORD
The National Organization for Rare Disorders (NORD) will honor a distinguished group of individuals and industry leaders for their contributions to help improve the lives of more than 30 million …
Read morePublished May 12, 2023 by NORD
On this Mother’s Day, NORD would like to recognize the rare disease “Mom” who 40 years ago, brought us all together to where we are today. Abbey Meyers is the …
Continue reading “Recognizing Abbey Meyers, NORD Founder and Mother of a Movement”
Read morePublished October 9, 2020 by NORD
Washington, DC, October 9, 2020—On October 8 and 9, the National Organization for Rare Disorders (NORD®) virtually hosted the 2020 Rare Diseases and Orphan Products Breakthrough Summit, the first time the organization representing over 25 million Americans impacted …
Read morePublished April 23, 2020 by NORD
The current COVID-19 pandemic necessitates a new approach to many aspects of life—particularly those that involve gathering together. The health and well-being of people living with rare diseases, their loved …
Read morePublished March 23, 2020 by NORD
Editor’s Note: The VHL Alliance’s Jeffersonian Dinner described below took place in early March. As we now practice social distancing in light of COVID-19, in-person events of this nature should …
Continue reading “NORD Member VHL Alliance Held Jeffersonian Dinner in Early March”
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