Rare Disease News

Inspiring Innovation:
A Look Back at the 2024 NORD^® Summit

Published November 8, 2024 by NORD

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Summit highlights, announcements, and insights Patients at the Forefront At the 2024 National Organization for Rare Disorders (NORD) Rare Diseases and Orphan Products Breakthrough Summit®, more than 800 attendees – …

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A Look Back at the 2024 NORD^® Summit”

2024 NORD Living Rare Forum and Rare Impact Awards Highlights

Published July 1, 2024 by NORD

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On June 7-8 in Los Angeles, California, the National Organization for Rare Disorders (NORD) brought our Living Rare, Living Stronger Patient and Family Forum and Rare Impact Awards to the …

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NORD Announces 2024 Rare Impact Award Honorees, Emmy Award-Winning Journalist, Peter Alexander to Host

Published April 22, 2024 by NORD

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The National Organization for Rare Disorders (NORD) will honor a distinguished group of individuals and industry leaders for their contributions to help improve the lives of more than 30 million …

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Recognizing Abbey Meyers, NORD Founder and Mother of a Movement

Published May 12, 2023 by NORD

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On this Mother’s Day, NORD would like to recognize the rare disease “Mom” who 40 years ago, brought us all together to where we are today. Abbey Meyers is the …

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NORD Announces 2023 Rare Impact Award Honorees and 40th Anniversary Celebration

Published February 27, 2023 by NORD

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May 4 Ceremony in Washington, DC will honor rare disease innovators, advocates, and partners as part of NORD’s 40th Anniversary Celebration Washington, DC, February 27, 2023—National Organization for Rare Disorders …

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Highlights from the 2022 NORD Breakthrough Summit

Published November 1, 2022 by NORD

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Last month, more than 830 enthusiastic attendees gathered in-person (and many more virtually) for the 2022 NORD Rare Diseases and Orphan Products Breakthrough Summit to address and take action on …

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NORD Highlights New Era of Innovation and Public Health Awareness in Virtual 2020 Rare Diseases and Orphan Products Breakthrough Summit

Published October 9, 2020 by NORD

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Washington, DC, October 9, 2020—On October 8 and 9, the National Organization for Rare Disorders (NORD®) virtually hosted the 2020 Rare Diseases and Orphan Products Breakthrough Summit, the first time the organization representing over 25 million Americans impacted …

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The 2020 Living Rare, Living Stronger Forum Will Now Be Presented As A Virtual Event

Published April 23, 2020 by NORD

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The current COVID-19 pandemic necessitates a new approach to many aspects of life—particularly those that involve gathering together. The health and well-being of people living with rare diseases, their loved …

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NORD Member VHL Alliance Held Jeffersonian Dinner in Early March

Published March 23, 2020 by NORD

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Editor’s Note: The VHL Alliance’s Jeffersonian Dinner described below took place in early March. As we now practice social distancing in light of COVID-19, in-person events of this nature should …

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NORD Announces Important Update Regarding the 2020 Living Rare Forum

Published March 16, 2020 by NORD

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The health and safety of the rare disease community is always our top priority at NORD. With that in mind, the Living Rare, Living Stronger NORD Patient and Family …

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