Rare Disease News

Key Dates Approaching for NORD Summit

Published August 18, 2016 by NORD

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Researchers have the opportunity to present research to a large and diverse audience during the 2016 #NORDSummit

FDA Commissioner Dr. Robert Califf to Speak at NORD Summit in October

Published June 30, 2016 by NORD

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The Commissioner of the U.S. Food and Drug Administration, Robert Califf, M.D., will speak at NORD’s annual Rare Diseases & Orphan Products Breakthrough Summit in October. Commissioner Califf will provide …

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Register: Rally for Medical Research Hill Day 2016, Sept. 21-22

Published June 29, 2016 by NORD

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Save the date for Sept. 21-22 for a nationwide day of action! Join NORD and 300+ partner organizations as we ‘rally’ for medical research as part of the annual Rally …

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See What’s New and Exciting at the NORD 2016 Summit, Oct. 17-18!

Published June 23, 2016 by NORD

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Events

The complete agenda for the 2016 Rare Diseases & Orphan Products Breakthrough Summit is just around the corner! We’re excited to share with you all that we’ve been working on – here’s …

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Join the Team: Running for Rare Takes on Hartford

Published June 21, 2016 by NORD

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Join us in Hartford, Conn. on October 8th! For the first time, NORD’s charity marathon team, Running for Rare, will participate in the Eversource Hartford Marathon. We are thrilled to have the team …

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Register for a FREE Webinar on the Undiagnosed Diseases Network (UDN)

Published May 23, 2016 by NORD

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Learn more about the Undiagnosed Diseases Network (UDN) by registering for this free webinar (June 3).

NORD Summit 2016

Published May 23, 2016 by NORD

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NORD’s Rare Diseases and Orphan Products Breakthrough Summit will be held in Arlington, VA October 17-18

NORD to Hold Rare Diseases Roundtable

Published May 12, 2016 by NORD

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The National Organization for Rare Disorders (NORD) will host a roundtable on May 17 with a wide range of stakeholders who are creating positive change across the rare disease community. …

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Introducing the 2016 Rare Disease Day® Highlights Video

Published April 7, 2016 by NORD

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Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day®. This is the one day that everyone comes together globally to …

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NORD Announces 2016 Rare Impact Award Recipients to be Honored on May 17

Published March 17, 2016 by NORD

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Continuing its annual tradition of recognizing the people, organizations, advocates and companies who are making a difference in the fight against rare diseases, the National Organization for Rare Disorders (NORD)® …

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